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Old 12-16-2008, 03:55 AM   #1
Lien
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Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
Be careful with Zometa. It can cause necrosis of the jaw. A serious condition. Until they figured out a way to either treat or prevent the necrosis, think twice before you start taking it. I've heard some worrying stories. As I have jaw problems already, I'm not taking any chances.

Jacqueline
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Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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Old 12-16-2008, 07:41 AM   #2
Paris
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Thanks for your kind replies ladies. I often find when I read these studies that I have more questions than I did before reading. It would have been much more imformative if the researchers had split out all the different populations of the study like age and er status. It just leaves me wondering what the numbers were for pre-menopausal hormone negative people were. I do feel fortunate that I got many opinions as there were those doctors that felt that chemo/herceptin was like an insurance policy since at that time they felt I had only a 10% chance of recurring if I did no adjuvant therapy. Obviously now that this study came out that 10% is not accurate. Maybe I am splitting hairs but I have had so many things happen cancer wise that shouldn't have happened due to my "good stats" that it shakes my confidence to a degree. Yes, I do keep myself busy, take care of myself and enjoy life. I just wish I could shut off that little voice in my head!
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Diagnosed 11/06 IDC left breast Stage 1, High Grade w/extensive High Grade DCIS. Right breast extensive hyperplasia w/calcifications.
ER-/PR- HER2+++
Bi-lateral masectomy 12/15/06 w/expanders
SNB Node Negative
Chemo Taxotere, Cytoxan 2/07-4/07
Herceptin Started 5/07
Exchange surgery 6/15/07
Herceptin stopped after 12 rounds due to herceptin induced cardiomyopathy
On heart meds 'til?
Age 40 at diagnosis
Cancer may have been a defining moment but it does not define me!
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Old 12-16-2008, 06:19 PM   #3
RobinP
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Harrie,

I Checked Adjuvant Online The Other Day Again And Did Not See The Her2 Data. Maybe I Should Look Again. ANYWAY, THANKS FOR THE POST AND GOOD LUCK TO YOU.
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2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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