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11-18-2008, 09:04 AM
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#1
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Senior Member
Join Date: Nov 2005
Posts: 943
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release of my new BREAST CANCER BOOK!
MY BOOK, BREAST LUMP WHAT LIES BENEATH by ROBIN M. GRAY RN is done at long last and available finally on many online bookstores like amazon.com and barnes and noble.com. The unveiling of my breast cancer misdiagnosis true story to help prevent others from a misdiagnosis and to help those who have already been misdiagnosed via an emotional healing and lawsuit litigation chapter, took several long years of hard work. I have taken a leap of faith in making it a mainstream book by using my maiden name and anonymous names throughout in order to protect doctor identities and egos. You may visit these online links to view or purchase my book:
US AMAZON.COM PURCHASE OF MY BOOK (available in uk amazon too)
http://www.amazon.com/BREAST-LUMP-WH...f=pd_rhf_p_t_2
BARNES AND NOBLE ONLINE PURCHASE OF MY BOOK
http://search.barnesandnoble.com/Bre...5235141/?itm=1
LULU.COM PURCHASE OF EBOOK VERSION:
http://www.lulu.com/content/2809715
MY BOOK BLOGSPOT ( HAS CORRECT BOOK DESCRIPTION, NOT YET LISTED ON ONLINE BOOK STORES):
http://breastlumpwhatliesbeneath.blogspot.com/
Thank you for all of your kind words and support over the time I have been posting; it has been really appreciated.
Love to all!
Robin
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
Last edited by RobinP; 11-20-2008 at 08:34 AM..
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11-18-2008, 10:14 AM
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#2
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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Congratulations on your book.
I know how much time and hard work is involved.
Nice Cover.
RB
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11-18-2008, 10:52 AM
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#3
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Way to go, girl! Surely am proud of you and happy for you too!
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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11-18-2008, 10:57 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Robin...
congratulations!!! Take care and God bless.
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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11-18-2008, 11:20 AM
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#5
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Senior Member
Join Date: Nov 2005
Posts: 943
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Thanks..
Thanks for your support everyone. Also, a BIG thanks to RB.
PS. A percentage of the sales of my book will go to Young Survivor's Coalition and Her2 support, my favorite online boards.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
Last edited by RobinP; 01-04-2009 at 09:41 PM..
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11-18-2008, 12:45 PM
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#6
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 3,000
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Kudos!
Kudos My Friend. I am in need of new material, not to mention that I just got a new and rather empty bookcase; now that makes 6. I am so proud of you, Robin. Thank you for posting this for us all to see. You must know by now that we are all each others best supporters. Here's looking at you kid!!>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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11-18-2008, 02:18 PM
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#7
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Senior Member
Join Date: Aug 2006
Posts: 492
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Looks fabulous!! Congratulations!!! I hope women googling breast lumps/symptoms will run into it.
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
Last edited by Margerie; 11-18-2008 at 05:11 PM..
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11-18-2008, 02:24 PM
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#8
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Congratulations Robin, I hope it'll be prove to be very sucessful for you and well done on all your hard work.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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11-18-2008, 03:37 PM
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#9
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Congratulations, Robin! I know your book will help thousands!
__________________
For Nicola
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11-18-2008, 05:00 PM
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#10
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Senior Member
Join Date: Nov 2005
Posts: 943
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Thanks for all the congratulations; you guys are the best at supporting and encouraging. I do hope that many who need a guiding light for diagnosis, will find it too.
Believe, I truly appreciate all of your interest and very kind encouraging words. I know my book will feel at home in your new bookshelf-ha, ha. I also think you will be blessed by the final healing chapter, which is very uplifting and spiritual.
Bill, I hope you are right, but even if it just helps one woman avoid the pain I went through, I know it was worth my hard work. In fact, the first thing I did when I finally got my proof copy was kiss the book, shed a few tears and said a prayer that my book would get into the right hands.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
Last edited by RobinP; 11-20-2008 at 10:03 AM..
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11-18-2008, 08:57 PM
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#11
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Robin,
Congratulations on you new book and all the hard work you put into it!
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2023 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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11-19-2008, 05:14 AM
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#12
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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Too cool!
Writing and publishing a book is NO SMALL DEAL! I am so impressed and excited for you. Congratulations and thank you for contributing such a valuable resource!
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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11-19-2008, 07:02 AM
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#13
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Wow! Congratulations on the publication of your book. It will be a valuable resource for many.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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11-19-2008, 11:33 AM
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#14
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Lost Regiment of Her2's
Hey Robin,
Thanks for writing the book for us all! Delayed diagnosis is a gift from a sloppy doc that can keep on giving, and is a huge violation of trust. I'm looking forward to sharing your thoughts and feelings in the book and learning from what you went through....
AlaskaAngel
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11-19-2008, 02:29 PM
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#15
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,809
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Congratulations! Hope it sells well and many, many women get the help they need.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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11-19-2008, 05:02 PM
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#16
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Senior Member
Join Date: Nov 2005
Posts: 943
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AA, I know you're going to enjoy this book! You're not going to believe some of the stuff that some of my docs TRIED to get away with, using phony explanations to explain away their inexplicable errors. Anyway, that is a part of the underlining reason why 10,000 women plus get misdiagnosed a year. Women need to know what REALLY lies beneath; thus, the purpose for my book.
PS
Love your statement, AA, "Delayed diagnosis is a gift from a sloppy doc that can keep on giving, and is a huge violation of trust."- AMEN AA
PS- Online book stores have my book description screwed up for now, so if you're looking for the correct one, go to my blogspot listed in the post at the top of this thread. Thanks.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
Last edited by RobinP; 11-26-2008 at 12:15 PM..
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