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Old 11-07-2008, 02:03 PM   #1
ElaineM
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Wink When to change tracks? The Talk

Kathy,
It is easy to see how much support you have at this site.
We are all supporting you and wishing you the best.
When I was in my late 20's I experienced a life changing event. My mother told me to hold my head high and keep putting one foot in front of the other and keep going. She told me things would work out. She was right. I offer you the same advice today.
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Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 11-07-2008, 04:10 PM   #2
StephN
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Location: Misty woods of WA State
Posts: 4,128
Dear Kathy -
Well, darn those inscrutible Japanese!
They must not have much experience with us determined types. Maybe Japenese women are taught to accept things and not kick back, but this is your life!

When I was given bad news of my raging liver tumors my onc did not send me off to get info on end of life issues. He sent me upstairs to get DRUGS.

Hope the heart scan today showed some improvement. And do some creative thinking and then make your onc do the same. I am sure you can get something "off label" that will work for you.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 11-08-2008, 04:23 PM   #3
ElaineM
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Wink When to change tracks? The Talk

StephN
Love your strong spirit, StephN. You are going to live forever-------well almost !!
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Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 12-02-2008, 03:13 PM   #4
Vic
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Location: Newport Beach, CA
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Your head and heart are in the right place!

Hi Kathy,

Your "from-the-heart" message is as real as it gets and I encourage you to keep writing. You have a healthy balance between the head and the heart and as ElaineM (and the others) said, just keep going, putting one foot in front of the other. I learned from a Zen meditation talk about how we go straight on a winding road and we just pay attention and keep moving forward, doing what needs to be done. Sending you loving vibes from So. Cal.

Vicki Z, who loves ahi tataki, miso soup, sushi, mmgood.
__________________
Diagnosed 12/03 at age 53
1.5cm tumor, ER-PR-, Her2 3+(rt side)
Stage 1B, Three negative nodes from Sentinel Node Biopsy
Paget's of the nipple, Infiltrating Ductal Carcinoma and DCIS of the rt breast
Bloom-Richardson score 8/9, P53+ 60-70%, Ki-67+ 30-40%
Skin-sparing mastectomy with immediate lat-flap reconstruction and saline implants, 1/04
Chemo: FAC, five sessions every three weeks Feb.-May 04, then switched to HTC weekly for 12 weeks, June-Aug 04
Zometa every 6 months for osteopenia, started April 09
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