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10-25-2008, 06:45 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Joy, it's good to hear from you, and I hope that your body will "get used to" the new treatment soon. Hang in there, my dear.
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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10-27-2008, 04:27 PM
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#2
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Senior Member
Join Date: Oct 2007
Posts: 57
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Gemzar Joy low platelets etc.
Hi Joy and all,
I have had 2 Herceptin/Gemzar treatments and understand your challenges! After just one weekly treatment my liver enzymes, ast, alt, and alk all went up dramatically! Did your liver enzymes go up at all? My platelets went down to 87 after 2 treatments. I had to skip the third week. I may receive it every other week as it is very hard on my body, and I am a small person. I was told to use toothpaste for sensitive teeth while on this med; also with low platelets and lower white blood cells, it does not seem like a good time for dental work. I take Kytril for nausea and it works very well. (But for mild nausea some people probably can take Compazine.) Hope to hear from you. Lida
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10-28-2008, 07:30 AM
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#3
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Joy, you never stop amazing me. As rough as things are at times for you, you always manage to find the silver lining in things, looking at the glass half full verses half empty. You continue to be a true inspiration to us all. Hope the next round isn't as tough on your body.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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10-28-2008, 07:38 AM
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#4
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Joy,
thinking of you on this Tues! You just amaze me all the time. Keeping you in my prayers and you keep that beautiful smile going.
Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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10-29-2008, 05:33 PM
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#5
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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Dear Joy
Hi Joy, It is always so good to hear from you and you are always here in my prayers. You have given me so much inspiration in the past 4 years, and like you, today I dreaded going in for Abraxane/Avastin. Now I am home in front of the fire and truly grateful for a roof over my head and the food my husband is cooking and my children and grandchildren and all of you here on this site. Thank you again, Joy, for sharing your stories and your life...We love you very much, Vickie
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Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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11-04-2008, 09:14 PM
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#6
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Joy,
Thanks for the update. You have a cute way of describing a lead tummy. Insomnia should be outlawed. The chemo takers need their sleep, doesn't the Department of Insomnia know that?
Want to bump this up to share with others. Thinking of good things for you and your family.
Hugs, Catherine
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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