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This is a great discussion because my tumor was ER+(5%), PR+(2%) and HER2+++. I am young (dx age 34 should have been 33, but we won't go there). I have seen a few of you with my similar dx's and I too worry about Tamoxifen/Herceptin. I feel like there are so many opinions and different options that we all have taken, but the end result is we were diagnosed with BC and we all just want some answers about reoccurrence. My onc (and the others on her team) say no scans needed, but I have a very difficult time with this. How can anyone possibly same I am NED if they don't do any scans and see what's in there? I saw what happened with my mother (passed away on 6/17/08 of leptomeningeal brain cancer) and I know I am different because I am "early stage", but it just blows my mind. The only test I am having is a mammo in January on my left breast. Can anyone answer when I am considered NED? Is it immediately after chemo or after my herceptin tx? I haven't started Tamoxifen yet, I have the prescription, but just haven't filled it yet. I am doing the mail order thing, but I just can't send it in. Why??? I know I need to, but I am completely slacking. Thanks for listening.
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-Sarah-
Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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