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Gemzar side effects etc., for a friend
Hi Amazing Group,
One of my very dearest friends met with his oncologist today for inoperable stage 4+ bladder cancer. He will be on Gemzar weekly and Cisplatin once a month. I don't know much about Gemzar from the real source, meaning from the people who take it.
I know from experience the side effects listed by the drug companies can be incomplete or skewed. The side effects listed by the drug companies are ususally not the ones people have most often or the things that bother them the most. Nausea can be handled, lack of energy all those things that you think are gonna be the big deals are not because there is something you can do to make them tolerable, a little bit better. It's the taste, the hearing, the persistent disruption of your senses that is the kicker - because that is what is non-stop and not fixable and the window we see, hear, taste, feel and smell our lives through.
I do know where to go to find the REAL story - right here!
Anyone with any personal experience or know someone who has had experience that will be more relevant than the description on the box?
Thanks so much to all of you for your caring, your warrior spirits - you are my family!
Donna
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Donna in the Sierra Foothills of California
Diagnosed 6/7/06 invasive ductal carcinoma/ductal carcinoma in situ
Lumpectomy 6/21/06
Pathology: Er 99% Pr 10% Her2/neu 3+
DNA Index 1.0
S-Phase 3/High
Primary Tumor 2.4 cm Sentinel Node Tumor 2.1cm
A/C/T+ Herceptin + rads + Arimidex
stopped Herceptin after 7 mos. due to low MUGA
Surgery for thickened uterine tissue May 2008 - conclusion: side effect of Arimidex
Switched from Arimidex to Femara - joint/tendon problems significantly better!
2 year mark Pet scan and Echo shows all clear!
5 year mammogram with ultrasound shows no sign of cancer - yay!
11 years, 11 months new breast cancer - found lump
Mastectomy 4/30/2018
Pathology: Er99%, PR 28%, Her2 negative! (new type)
Faslodex
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