Hello there,
I have been officially been taken off of Herceptin. I see a Cardiologist and he has stated that I will never ever take it again. My initial score was 68% and it has dropped to 42%. I had 3 rounds of FEC (epirubicin is the bad one) and then 3 rounds of Taxotere and Herceptin and 1 final round of Herceptin. I am now taking Metoporol and Ramipril (Altace). I did have 28 Tx of RAD on my left side. I am still quite tired and don't have a lot of "giddy-up" some days.
My Cardiologist has scheduled an MRI and an Echo. I see him at the end of September. He feels that I will either stay the same or improve with time.......it's anyones guess.
He has been running a Study here in Manitoba to see the long term effects of Herceptin......I am his 68th Pt in 2 years who has developed heart issues.
I just have to live each day and pray for the best.
I pray that you will have positive news.
__________________
Michelle Dick
" Adversity Reveals your strength"
Dx August 15th/07
Invasive Ductal Carcinoma
ER/PR- negative, HER2- positive
Stage 11 with tumor size 3.5cm, .7cm satelite node
Sx Oct 2nd/07
Skin sparing mastectomy of left breast
immediate reconstruction DIEP flap
Nodes 0/3 Sentinal Node Biopsy
Chemo started Nov, 3 rounds FEC and 3 rounds Taxotere and Herceptin every three weeks
Radiation 28 Tx ended on June 13/08
Herceptin was stopped due to falling MUGA score (went from 62 down to 42)
Cardiologist Appt June 24th
Ramipril 2x/d to protect heart and hopefully increase LVEF
Officially NED
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