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Old 07-07-2008, 05:40 PM   #1
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Audrey, I knew it was just a matter of time and you would check in long enough to add your NED status. It's so appreciated. No doubt MichelleU is off enjoying her summer as is most...but I'm sure she will eventually check in here soon enough too. Because we can't forget her...she is 5 or 6 years out too. Wooo hooo to both of you.

Thanks again to Donna for starting this thread. Maybe we can get a few of the lurkers to join in here. I'm sure there are many more we haven't heard from. The more the merrier as they say.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 07-07-2008, 10:01 PM   #2
Catherine
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Join Date: Dec 2006
Location: Oregon
Posts: 715
NED for 2 years and 3 months. Just had my second follow up after the end of my 1 year Herceptin. I feel very good and I even think my stamina is returning. This is a very hopeful post that I would have been happy to read when I was first DX.

If a recurrence shows up, I plan to fight it off just like the other warrior women and good souls on our Her2 site. (easy to talk big now that I feel good

My oncologist will see me every 4 months. He relies on my report to him, a hands-on exam and tumor markers. I am happy to report that my tumor marker was a 7. (I think he considers anything under 40 to be normal and markers can also give false readings.) I will get a pet scan or similar if I complain of aches and pains and anything new that does not feel right.

Hugs to all, Catherine
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Catherine


Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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