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Old 07-05-2008, 09:39 PM   #21
danceswithrain
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Join Date: Jun 2007
Location: Alaska/arizona
Posts: 26
I feel better just since posting. Your right Rhonda it is a line! There have been so many great suggestions and just support here it helps to know your not alone. And I have felt that way for quite some time. The worst part of depression is just trying to do the things you need to do to get better instead of just crawling in a hole somewhere. It is also hard to let anyone know just how rough of shape I'm in. I've been 'sucking it up' for my family, my employer, my neighbors since I was diagnosed for fear of being critisized or seen as unable to do my job. Running hard, still trying to be the tough girl I guess. It is hard to reach out. Thank you all!
Nice to hear from you again my old friend 'alaska angel'
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Vicki
dia 4/07 stage 3 grade2
4.3cm w/enlarge lymph nodes;
er/pr-,HER2+++;Ki67 55%
TCH X3 every 3wks till 8/7/07,
Herceptin till 4/4/08
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Old 07-06-2008, 05:42 AM   #22
Sheila
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Location: Morris, IL
Posts: 3,507
Dances with rain
Love the name...since I am part Cherokee, I wonder what mine would be....yours is very peaceful, takes me to a childhood time when you would see a storm coming and go out and feel each raindrop hit your skin and cool you. Sometimes I think we expect so much from life itself, we need to return to our beginnings to see where we are meant to go...to much simpler times to handle the more difficult ones....to acknowledge this issues you face is the most important part...take one thing at a time, don't overwhelm your self, you will defeat the goal...start each day with the thought of one thing you will be thankful for that day....and one thing you will not let burden you....it took a long time from you to get a handle on this disease, and now it takes time to get some normalcy back....life will be ever changing, and we are here with you on this journey....as Sassy said, "we have your back"
Much love and peace
Sheila
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"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 07-06-2008, 12:08 PM   #23
chrisy
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Location: Central Coast, CA
Posts: 3,207
Vickie,
I'm with PatB - it is very common to get post traumatic stress after "finishing" with cancer. For so long, chemo, surgery, sometimes radiation, herceptin, you are so focused on pushing through it and being strong you put a lot of the emotional stuff on the back burner. Then wham - it comes at you out of nowhere.

At least that was what happened to me after my initial diagnosis and treatment. I thought I was done and should be feeling terrific but I found myself just crying at inappropriate times for no reason at all. I had read about post traumatic stress reaction after cancer treatment but it took me a while to recognize it.

Hang in there, be gentle with yourself and realize it may take some time. Get whatever help you need along the way.

And yes, we are all in line to support and love you.

Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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