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05-29-2008, 03:54 PM
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#1
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Back on the Taxol Train for ME
Boy, I feel like Cinderella....I just knew the clock would strike midnight! Tried everything to get the insurance to pay for Abraxane, but they won't until I fail on Taxol. I received a 2 month vacation from it, after 10 months straight of treatment....it wasn't the Taxol but the steroids making me swell like Violet in Willi Wonka, shortness of breath, bloody noses...all the nice things, oh and the neuropathy and indigestion...I was hoping the darn nodes would behave, but in just 2 months, they are back like crazy in my neck....NOTHING SEEMS TO WORK....no sing of mets to any other organs, but there is a suspicious area on my left hip....I am praying that it is arthritis!!!! So 12 hours today for Dr visit, tests, blood counts, Decadron IV pUSH, Benedryl, my every 2 week Taxol and my best friend, the Herceptin....the countdown begins again till I lose the 1 1/2 in of growth that resembles real hair instead of bird feathers...the fight is ongoing...and through a few tears, I am not giving in!!! This must be the weepy week for many of us.
And I am blessed with so many BC experts to talk to here....I Love You All because you truly understand all of this!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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05-29-2008, 04:08 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Too short a holiday
Sheila, sorry your taxol holiday was only long enough to give you a TASTE of how nice it is to have a bad hair day. Much as I know you hate getting back on that train, taxol not failing you is of course a good thing. And only a breast cancer fighter would hope for arthritis!
I know how discouraged you must feel...and at the same time I know your next step will be to get really pissed off at that dumb canser and then it better watch out. Have a good cry, then suit up with that pirate bandanna...
I'm sure you've considered this, but have you ever tried to maybe reduce the dose on the decadron? I used to get it as an IV drip and after a couple of weeks I asked them to drop the dose, and they were able to cut it in half. It helped me a lot - I used to get a cherry red face the next day - and of course kept me from being up all night wanting to clean house or something. That of course, is my husband's job!
Hang in there, my sweet sister.
Love
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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05-29-2008, 04:36 PM
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#3
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Senior Member
Join Date: Sep 2005
Posts: 556
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Shiela,
I am sure you would have thought about it but is there any way to do surgery or radiation(I read somebody did cyberknife for their mediastinal nodes) or someother thing locally than to be on a chemo? If only one area is getting affected repeatedly why can't we treat it locally? You have been on my mind latley and this is what I keep thinking about you.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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05-29-2008, 06:03 PM
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#4
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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Shelia, Hang in there, as the Bruce Springsteen song says" there are better days ahead.
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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05-29-2008, 06:17 PM
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#5
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Sweet Sheila, I'm sorry about the Taxol/Abraxane thing. You are such an incredibly strong warrior. Keep fighting the good fight! And when you feel low, and down, just take a deep breath, and look out the nearest window, and glance out at the stars, moon, or sun, and know that we are all doing the same, and praying that our Love and Light will be reflected from our spirits into yours. Love, Bill
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05-29-2008, 06:23 PM
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#6
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Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
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Shelia,
I was just wondering about you and if you were still on chemovacation. You are another one of the SUPERSTARS of this board - so positive in spite of your endless battle. Sorry to hear that you are having to get on board the Taxol Train once again. Chrisy had a great suggestion about the decadron. I'm pretty sure I only had to have it when getting AC. I believe with Taxol the only pre-med I had was Benadryl - but then I could be thinking that just because I didn't have to take it for 3 days post treatment like I did with AC. Hope it can somehow be made more tolerable for you this time around.
Thanks for being such an inspiration to all of us here.
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
Last edited by Gerri; 05-29-2008 at 07:17 PM..
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05-29-2008, 06:34 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Awww rats Sheila. Those nodes seem to be so pesky. I wish I could be there and give you a big hug. Know that I am thinking about you.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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05-29-2008, 06:42 PM
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#8
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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Sheila
You are so tough and I know you can do this, but geez I'm sorry you have to do the dumb taxol. And it makes me CRRazy that insurance can be so dopey. Maybe some of their decision makers should have to jump through the toxic hoops to know why streamlining is so importatn (I know that is not a nice thing to say, but sometimes they aren't nice). I am thinking of you so much and hoping the decadron issue gets resolved.
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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05-29-2008, 06:58 PM
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#9
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Sheila,
geeees, enough already....these insurance guys really annoy the heck out of me. I am so sorry you have to
get on board....the trian...please know I am thinking of you.
You are one strong cookie....yet sweet and soft at the same time...make sense? Anyways, you know what I mean....just know there are many shoes to buy sweet friend...and they are just waiting for you.
Hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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05-29-2008, 07:17 PM
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#10
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hands folded in prayer for you sweet "sister" and then arms opened wide to give you a big, gentle hug.
Love to you.......
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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05-29-2008, 07:20 PM
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#11
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Sheila,
I am so sorry you are having these problems and must go back on Taxol. I hope you can reduce the Decadron. When I was on it, I skimmed the algea from our small lake! I couldn't do that now by any means! Maybe you have some "chores" to do?!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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05-29-2008, 07:25 PM
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#12
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Shelia,
So sorry you have to get back on chemo. I am thinking of you.
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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05-29-2008, 07:32 PM
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#13
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Sure wish this one could have passed you by, Sheila. You've been in this line already! I'm sending prayers, hugs, and whatever silly thing will make you smile. Much love, ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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05-29-2008, 09:45 PM
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#14
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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Sheila - can I ask what insurance you have? I am VERY lucky to have medicare. My doc gives me what I need. Medicare denies coverage. Then we (doc and I) write letters why I needed the treatment they denied and then after a few months they cover it. Happens all the time. I am lucky enough my doc works with me, but then again my treatments are huge in cost and he always gets paid in the end. Good luck sweetie. Believe me, I know very well how much this stinks. I've been bald six times, and just this week I was able to pull my hair back into a small pony tail!!!! Hang in there!!!!
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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05-29-2008, 11:51 PM
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#15
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Guest
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It's me - StephN - across the state at Mom's.
Just wanted to peek in and found this post that I can't ignore.
BLAST those darn nodes. I think you should start working on a transplant and get rid of them.
Did you try Abraxane? Can't recall just now.
Yes, back to owlet down for hair. I still miss my very short hair at times. Have one friend who never lets hers get more than 1 inch long. It is really cute, even though she is now 10 years passed her treatment.
Just keep that fighting spirit hanging tough. You know we will be thinking some VERY nasty thoughts for those nodes to behave or else!
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05-30-2008, 12:34 AM
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#16
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Ok Cinderella....like the Daniel Powter song (Bad Day)...
Cause you had a bad day
You're taking one down
You sing a sad song just to turn it around
You're coming back down and you really don't mind
You had a bad day
I use to play this song over and over and over again as I was kick'n ass during those chemo days. It gave me strength!
I know you are a fighter just like us and you have this huge support network right here cheering you on!!
Before you know it you will be enjoying your Blue Sky holiday! I just know it!!
Aloha,
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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05-30-2008, 04:50 AM
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#17
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Senior Member
Join Date: Sep 2005
Location: MN
Posts: 731
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Sheila -
I read your posts often. I'm sorry to hear both of the insurance issues and your return to taxol.
I want to tell you that I'm on taxol & avastin. I've just had my 3rd weekly treatment. I've really hated decadron side effects from previous treatments so I asked the doc for reduced dose. The 1st tx I had 10 mg, 2nd tx 5 mg, and 3rd tx no decadron. It went fine so I think he'll say I won't need it for other tx. This was all in the pre-meds; I don't take the pills either. Maybe you could try a reduction & see how it works.
Wish you an easy ride.
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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05-30-2008, 05:17 AM
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#18
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Thanks to everyone for all the love and support.... always know I can come here anytime of day and find love, support, answers....
This morning, I do look like I was in the sun all day yesterday, lovely bright red face...oh the marvels of decadron...I do live on a large pond, but I have not skimmed it yet....no swimsuits for this decadron enhanced body! The plan is already in place to continually reduce the decadron and hopefully the benedryl so I can drive myself to treatments...this week is was 8mg Dec IV, 50 IV Benedryl...same next time, then 3rd RX 6mg Dec and 25 Benedryl....that for 2 sessions...hopefully being able to wean the Dec down to 2mg per RX. I won't miss the butt burn at all from that stuff!!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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05-30-2008, 06:11 AM
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#19
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Good luck Sheila. I'm sorry you have to go through this, but as the warrior you are I know you will come through with flying colours.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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05-30-2008, 03:31 PM
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#20
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Sheila
My thoughts are with you as you start down another
road on this journey. May this road be paved with
healing and better days for you dear sister. I will
be thinking of you and sending good thoughts your
way.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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