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04-17-2008, 11:31 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Truth
Pro or con, I hope a fair number watch the program. Although it wasn't a pretty picture, I liked the program a LOT for that reason alone. It was much more honest than so many of the programs presented by people who cheerlead all the time about it but minimize it or have never actually "been there".
We all need encouragement, but presenting cancer as just a brief detour in our lives that we "heroically" conquer along with a lot of pink slogans totally leaves out those who are derailed over and over by it no matter how hard they try not to be.
I especially thought the doctor who treated the pancreatic cancer patient was remarkably truthful with the audience about the realities of cancer.
The doctor who specifically mentioned the importance of love (the tall quiet guy, Dr. Brenner?) got my attention, too.
A.A.
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04-18-2008, 01:12 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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I wonder if it's possible to see it on the internet. I'll look for it. Remember none of us would be alive today without Herceptin so there have been some great advances.
sarah
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04-18-2008, 06:57 AM
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#3
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Senior Member
Join Date: Mar 2006
Posts: 306
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I saw it.
Was 'glad' to see the reality from the perspective of those with progressing cancer. And also impressed with the onc of the gal with pancreatic ca.
The reality of just where we are in treating cancer. And the silliness of the 'prevention' hooha, but for smoking (30% causal as quoted.). The rest, as we have repeadtedly stated in our own words: "A Crap Shoot."
The wrong thinking of 'they didn't fight hard enough'. And the blame (and guilt) of doing something to cause our ca.
Loved the discussion of the mistaken notion that 'early' detection/treatment was the ticket for cure or longevity, where in fact, many of the early cancers would resolve on their own anyway.
Being perverse, I also liked the 'put down' of Lance. He had the most treatable of cancers, testicular. As if he were the poster boy for CA in general......
The 'discussion' after was less than I hoped for, however. Especially the comment by the bc specialist, telling his patients to "stay away from the internet".
Would have liked this to be shown as a short series, with more real people and their experiences...
just me.
pattyz
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04-18-2008, 07:09 AM
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#4
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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I forgot about that one Pattyz. I also didn't agree with the doc who told us to stay away from the internet.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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04-21-2008, 01:21 PM
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#5
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Senior Member
Join Date: May 2006
Posts: 221
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I'm alive, without Herceptin
<snip> Remember none of us would be alive today without Herceptin so there have been some great advances.
I'm alive without Herceptin. Losing the toss in the adjuvant trial was one of the hardest blows of those early days. Of course now I'm less upset (smile), as I'm still here after 7 years.
Not everyone got it. And of those who did, it looks like it works for roughly half adjuvantly and less than that in the metastatic setting.
You probably meant "some of us wouldn't be alive" and that's true. I just wanted to make sure no one misunderstood.
Debbie Laxague
</snip>
__________________
3/01 ~ Age 49, occult primary announced by large axillary node found by my husband. Multiple CBE's, mammogram, U/S could not find anything in the breast. Axillary node biopsy - pathology said + for "mets above diaphragm, probably breast".
4/01 ~ Bilateral mastectomies (LMRM, R simple) - 1.2cm IDC was found at pathology.
5 of 11 axillary nodes positive, largest = 6cm. Stage IIIA
ERPR 5%/1% (re-done later at Baylor, both negative at zero).
HER2neu positive by IHC and FISH (8.89).
Lymphovascular invasion, grade 3, 8/9 modified SBR.
TX: Control of arm of NSABP B-31's adjuvant Herceptin trial (no Herceptin): A/C x 4 and Taxol x 4 q3weeks, then rads. Arimidex for two years, stopped after second patholgy opinion.
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04-22-2008, 05:09 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Me too
I "missed out" on Herceptin also, and then eventually chose not to have it, so here is one more who is still alive and well without it at over 6 years out. Although I was stage I and not stage III like Debbie, I also have never had a taxane at all (at least at the time the thought there was that taxanes only benefitted HR negatives). I also did not have dose dense treatment. And I have never had an AI, either.
It is very puzzling sometimes, and of course even those who received all of those things do not know with any certainty that any or all of those treatment options helped at all. We only know that for some, they do.
AlaskaAngel
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04-22-2008, 10:10 AM
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#7
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Senior Member
Join Date: Oct 2007
Location: Australia
Posts: 309
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Thanks for posting about this show - and especially providing the internet link Cynthia - otherwise I may not have been able to watch it in Australia.
I did like the program - as much as I try and stay positive the realism was a good balance. I'm gad I got to see it.
Blessings
Hermiracles.
__________________
2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
***************
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04-22-2008, 10:59 AM
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#8
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Accessing the program
You are welcome -- I'm glad you were able to see the show in Australia as well, and that you all are finding the program to be worthwhile and truthful. Thanks, Cynthia, for helping everyone to see the PBS program.
AlaskaAngel
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