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Old 04-13-2008, 06:18 PM   #1
phurst
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Join Date: Oct 2007
Location: North Carolina
Posts: 26
Some Help after surgery

She just got home after a masectomy and the removal of all the axillary lymphnodes on the left side.Any suggestions of how to deal with someone who is alergic to bee stings and seems to attrack mosquito's.We live in N.C. where we have lots in the summer.The only thing i can think of is to wear something to cover up when she goes outside.Any help would be appreciated.
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Old 04-13-2008, 11:55 PM   #2
Merridith
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Join Date: Sep 2005
Location: Vancouver, BC Canada
Posts: 116
I would just do what you normally do to repel insects. If things are really bad, you can order a bug veil off of ebay. That's what I used to wear in the Yukon during bug season.

If you want to go really nuts you can order a whole bug suit - but it's pretty pricey. It essentially looks like a light-weight mosquito mesh in the shape of a jacket (with matching pants if you want!) that you can throw on over your top.

How about using it as an excuse to rent a holiday home in a bug-free zone in a different state for a month?

Regards,
Merridith
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Old 04-13-2008, 11:56 PM   #3
SoCalGal
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<table summary=" " border="0" height="55" width="93%"><tbody><tr><td height="49" width="63%">http://www.jhu.edu/shcenter/mosquitobites.html






Repelling Mosquito Bites

Are you using the right insect repellent?
</td> <td height="49" width="47%">
</td> </tr> </tbody></table>
Insect repellents containing the chemical DEET (also known as N, N-diethyl-3-methylbenzamide) provide the best protection against mosquito bites.
Other products or lotions which do not contain DEET are apparently not as effective.
This was evaluated in a study, published in the New England Journal of Medicine (July 4, 2002), which compared sixteen popular insect repellents. The investigators evaluated repellents which contained citronella, DEET, and IR3535. They also evaluated a variety of Avon® skin products as well as three different wristbands. They even evaluated a soybean-based product.
Volunteers inserted their repellent-treated arms into a cage with 10 unfed Aedes aegypti mosquitoes. The time it took for the first mosquito to bite was then measured.
What did the investigators find?

Of the all the repellents they tested, those with DEET provided the longest lasting protection.
  • 23.8% DEET (OFF! Deep Woods®) provided an average of 5 hours of complete protection after a single application.
  • 20% DEET (Sawyer Controlled Release®) provided an average of 3-4 hours of protection.
  • 6.65% DEET (OFF! Skintastic®) provided an average of 112 minutes of protection.
  • 4.75% DEET (OFF! Skintastic for Kids®) was found to provide an average of 88 minutes of protection.
A soybean-based repellent (HOMS Bite Blocker for Kids ®) was found to be the next most effective repellent after DEET products. It was found to work an average of 1.5 hours after application.
Avon Skin-So-Soft Bug Guard Plus® protected against mosquito bites an average of 22.9 minutes after application.
The wristbands were found to be ineffective.

Hope this helps.
Flori


__________________
1996 cancer WTF?! 1.3 cm lumpectomy Er/Pr neg. Her2+ (20nodes NEGATIVE) did CMF + rads. NED.
2002 recurrence. Bilateral mastectomy w/TFL autologous recon. Then ACx2. Skin lymphatic rash. Taxotere w/Herceptin x4. Herceptin/Xeloda. Finally stops spreading.
2003 - Back to surgery, remove skin mets, and will have surgery one week later when pathology can confirm margins.
‘03 latisimus dorsi flap to remove skin mets. CLEAN MARGINS. Continue single agent Herceptin thru 4/04. NED.
‘04 '05 & 06 tiny recurrences - scar line. surgery to cut out. NED each time.
1/2006 Rads again, to scar line. NED.

3/07 Heartbreaking news - mets! lungs.sternum. Try Tykerb/Xeloda. Tykerb/Carbo/Gemzar. Switch Oncs.
12/07 Herceptin.Tykerb. Markers go stable.
2/8/08 gamma knife 13mm stupid brain met.
3/08 Herceptin/tykerb/avastin/zometa.
3/09 brain NED. Lungs STABLE.
4/09 attack sternum (10 daysPHOTONS.5 days ELECTRONS)
9/09 MARKERS normal!
3/10 PET/CT=manubrium intensely metabolically active but stable. NEDhead.
Wash out 5/10 for tdm1 but 6/10 CT STABLE, PET improving. Markers normal. Brain NED. Resume just Herceptin plus ZOMETA
Dec 2010 Brain NED, lungs/sternum stable. markers normal.
MAR 2011 stop Herceptin/allergy! Go back on Tykerb and switch to Xgeva.
May-Aug 2011 Tykerb Herceptin Xgeva.
Sept 2011 Tykerb, Herceptin, Zometa, Avastin.
April 2012 sketchy drug trial in NYC. 6 weeks later I’m NED!
OCT 2012 PET/CT shows a bunch of freakin’ progression. Back to LA and Herceptin.avastin.zometa.
12/20/12 add in PERJETA!
March 2013 – 5 YEARS POST continue HAPZ
APRIL 2013 - 6 yrs stage 4. "FAILED" PETscan on 4/2/13
May 2013: rePetted - improvement in lungs, left adrenal stable, right 6th rib inactive, (must be PERJETA avastin) sternum and L1 fruckin'worsen. Drop zometa. ADD Xgeva. Doc says get rads consultant for L1 and possible biopsy of L1. I say, no thanks, doc. Lets see what xgeva brings to the table first. It's summer.
June-August 2013HAPX Herceptin Avastin Perjeta xgeva.
Sept - now - on chemo hold for calming tummy we hope. Markers stable for 2 months.
Nov 2013 - Herceptin-Perjeta-Avastin-Xgeva (collageneous colitis, which explains tummy probs, added Entocort)
December '13 BRAIN MRI ned in da head.
Jan 2014: CONTINUING on HAPX…
FEB 2014 PetCT clinical “impression”: 1. newbie nodule - SUV 1.5 right apical nodule, mildly hypermetabolic “suggestive” of worsening neoplastic lesion. 2. moderate worsening of the sternum – SUV 5.6 from 3.8
3. increasing sclerosis & decreasing activity of L1 met “suggests” mild healing. (SUV 9.4 v 12.1 in May ‘13)
4. scattered lung nodules, up to 5mm in size = stable, no increased activity
5. other small scattered sclerotic lesions, one in right iliac and one in thoracic vertebral body similar in appearance to L1 without PET activity and not clearly pathologic
APRIL 2014 - 6 YRS POST GAMMA ZAP, 7 YRS MBC & 18 YEARS FROM ORIGINAL DX!
October 2014: hold avastin, continue HPX
Feb 2015 Cancer you lost. NEDHEAD 7 years post gamma zap miracle, 8 years ST4, +19 yrs original diagnosis.
Continue HPX. Adding back Avastin
Nov 2015 pet/ct is mixed result. L1 SUV is worse. Continue Herceptin/avastin/xgeva. Might revisit Perjeta for L1. Meantime going for rads consult for L1
December 2015 - brain stable. Continue Herceptin, Perjeta, Avastin and xgeva.
Jan 2016: 5 days, 20 grays, Rads to L1 and continue on HAPX. I’m trying to "save" TDM1 for next line. Hope the rads work to quiet L1. Sciatic pain extraordinaire :((
Markers drop post rads.
2/24/16 HAP plus X - markers are down
SCIATIC PAIN DEAL BREAKER.
3/23/16 Laminectomy w/coflex implant L4/5. NO MORE SCIATIC PAIN!!! Healing.
APRIL 2016 - 9 YRS MBC
July 2016 - continue HAP plus Xgeva.
DEC 2016 - PETCT: mets to sternum, lungs, L1 still about the same in size and PET activity. Markers not bad. Not making changes if I don't need to. Herceptin/Perjeta/Avastin/Xgeva
APRIL 2017 10 YEARS MBC
December 2017 - Progression - gonna switch it up
FEB 2018 - Kadcyla 3 cycles ---->progression :(
MAY30th - bronchoscopy, w/foundation1 - her2 enriched
Aug 27, 2018 - start clinical trial ZW25
JAN 2019 - ZW25 seems to be keeping me stable
APRIL 2019 - ONE DOZEN YEARS LIVING METASTATIC
MAY 2019 - progression back on herceptin add xeloda
JUNE 2019 - "6 mos average survival" LMD & CNS new single brain met - one zap during 5 days true beam SBRT to cord met
10/30/19 - stable brain and cord. progression lungs and bones. washing out. applying for ds8201a w nivolumab. hope they take me.
12/27/19 - begin ds8401a w nivolumab. after 2nd cycle nodes melt away. after 3rd cycle chest scan shows Improvement, brain MRI shows improvement, resolved areas & nothing new. switch to plain ENHERTU. after 4th cycle, PETscan shows mostly resolved or improved results. Markers near normal. I'm stunned but grateful.
10/26/20 - June 2021 Tucatinib/xeloda/herceptin - stable ish.
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