Anyone's neuropathy gotten worse?

[Becky]

Even at its worst, during treatment, it was better to move around than sit still. It is pretty much gone but I get the "electric" feeling of it when I am the most tired and just lying around. Especially in the toes.

[Alice]

I don't know if I would consider mine worse, but it has changed since stopping chemo. Mine started when I was on A/C which my onc said was unusual. After chemo was done and surgery was done I had rads, that is when it started to change. From skin peeling, tingling sensations, and nails turning black and falling off, to severe burning senations in my arms and legs, along with the tingling. At that time I started taking neurontin and it does seem to help. I just saw a neurologist for the first time 2 weeks ago. He confirmed that I have the classic stocking and glove effect, starting at my elbows down to finger tips and starting mid thigh to tips of toes. He said at this point, being off chemo since 10/05, that it would not get better, but there are some new medications on the horizon that seem to help much more. The thing that bothers me most is the fact that it interferes with me getting the right type of exercise to stave off recurrance! And I am not a couch potatoe or a whimp when it comes to physical exertion. Anyway, acording to the neurologist it is not a matter of circulation. I don't know if this helped or not. good luck.
Alice

[Sheila]

Krista
I too am hoping in time it will get better...in my short break from Taxol, my legs are not near as achey, but I am still struggling with the feet and toes...have been since Xeloda...I didn't go to a wedding last night because all I could comfortably wear was flip flops, and it was 32 degrees!
I do avoid extreme cold and hot to try to calm it. I also walk every day, get comfy tennis shoes and Walk walk walk!!!!!