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Old 04-04-2008, 09:57 AM   #1
Angela
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Join Date: Apr 2006
Location: North Carolina
Posts: 45
Need Help!

Had PET that showed a spot on my right 9th rib. Had an x-ray of rib that said "not clearly seen" Yesterday the doctor said the only way to be sure it was cancer was to remove part of the rib and exam it because a bone scan can also show a false positive. He didn't recommend doing the surgery because it is not important to catch cancer early if it is a reoccurrence. He does not want to add the heavy chemo until we have too. I am currently on herceptin, nothing else. The PET also showed 2 enlarged lymph nodes on the left side near my neck. His statement...they were just enlarged. Maybe I just don't have a clear understanding of what a PET scan can and can't show. If this were you would you sit back and wait?

Also, for anyone with knowledge on PET scans. The doctor told my mom that this scan would be from the top of my head to the tip of my toes. But there was no mention of my brain at all in the report. We know I have 2 very small tumors left in my brain. Does a PET scan show brain tumors?
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Hugs and Smiles,
Angela - NC

Dx May 2003 at age 39
Lt mastectomy, no nodes
DCIS, PR- ER- Her+++
4 rounds AC
Recurrence Dec 2006 Rt lung
2/07 - 3 Brain mets - Radiation
3/07 -
Carboplatin and Herceptin
8/07- mets stable. Finished Carboplatin-remain on Herceptin
12/07 - Herceptin only
5/08 - Lung mets grew - tykerb and Navilbene. Reaction to Tykerb -9/08 Herceptin again
12/08 - Lung mets growing - xeloda.
8/09 - Given Zometa for precaution
10/09 - Lung mets back plus new ones. - Put back on Xeloda.
1/10 – Began short-term disability

2/10 –Lung mets growing - Gemzar
9/2010 – Scan show tumors in lungs growing. Put on Ixempra (every 3 weeks). MRI of the brain showed a brain bleed but it had stopped bleeding.


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Old 04-04-2008, 06:23 PM   #2
Bill
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Location: Connecticut
Posts: 2,077
Just bumping this up for Angela
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Old 04-05-2008, 09:44 AM   #3
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Angela
First of all, I would never take "bone mets" (if that is what it is) lightly. Make sure they did a RIB xray, and not just a normal chest xray...ribs do not show up definitively on a chest xray. As far as the enlarged lymph nodes in your neck, what area...some here have gone from mets to those nodes to brain mets, which you have already had. An brain MRI is the only way to clearly see size shape and location of brain mets....sounds like you need another opinion to see what treatment another BREAST oncologist would recommend.
Hope this helps!
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"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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