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Old 03-20-2008, 06:43 PM   #1
kcherub
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Okay, now I am not giggling.

I have been trying to post to others more lately, as I realized I was always coming on and whining and b*$ching about my varied symptom concerns. So, do I have credit for this one? Cause' it's kind of gross.

I posted a while back, about having an intermittent cough (really worse the last part of 2007). Let's say in February, I stopped coughing up phlegm. About three weeks ago, it started up again. When I get up in the morning, I might cough once or twice and produce something that varies from a clear blob (perfect circle), to tan, to tan with brown little flecks. I attributed the latter to smoking and a lot of it to allergies (I have had a post-nasal drip the entire time I have been on Herceptin). The cough is not choking, and I do have to actually work to produce anything.

However, this morning, I coughed and there was a small blood clot within the phlegm. I think it was dark blood, not very much. Nothing throughout the day (as usual), but then this afternoon, one more cough with a tinier amount of blood. I. freaked. out. Well, internally. I have to hold it together for my son and husband. I did tell my husband, but he didn't seem too worried. Like I have said before, he is in the medical profession, and doesn't panic about much. I saw him cry once during this whole thing, and that was the day he realized they had told him the wrong diagnosis from my biopsy (I don't even think I have told that one, maybe later).

Anyhoo, I have Herceptin in the morning (8:45 a.m.), and I am thinking of asking for a chest x-ray instead. I could do my Herceptin later in the day, or next week. The thing is, and this is totally not me, but I don't think I want to know. The "symptoms" I have had in the past have had about 30% BC and 70% other things. Too much is adding up, and because I still smoke, I feel like I deserve it. Okay, I don't really mean "deserve", but more like "I should have known better."

I haven't had one bit of an appetite for three weeks, my chest on both sides just above the collarbone has been throbbing for about 6 months, I am coughing up phlegm and now blood, and I have been out of breath. They thought that might have been Herceptin, but my ECHO was 60, which is what it has been the whole time.

Damned if all these things don't show up on the main four symptoms list. I have worked my way through all the hot spots for BC mets, I guess. I haven't had any imaging on my chest since 4/06 (my initial CT), so maybe if I get the chest x-ray and it shows up clear, I can strike lung off my list. Other than the really rare ones, I think the others are all I can worry about. For now.

So, really I don't have a point. I don't even think I am asking for advice. I just love being able to write it all out here, and not think anyone is tired of hearing about it!

Now, what can I do for you? LOL

Take care,
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Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA

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Old 03-20-2008, 06:50 PM   #2
kcherub
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I have just determined that I am the young, crazy one on the boards. So, I am smiling at least.
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Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA

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Old 03-20-2008, 07:05 PM   #3
Bill
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Cool

What can you do for me? You can get in there tomorrow and get your Herceptin, and then schedule a chest x-ray soon. Let your onc. and your chemo. nurses know what's going on, too. They may want to schedule a different type of test, but you need to do it asap. It's probably nothing, but for your own piece of mind, just do it. Love and prayers, Bill
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Old 03-20-2008, 07:17 PM   #4
Mary Jo
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Oh Krista,

I never tire of hearing from you and never think of you as whining or crazy! Far from it. I see you as one with a kind heart and soul but one who has concerns over "issues" going on with you. I see you "frightened" of these "issues" and afraid of tests just in case you hear what you don't want to hear. I TOTALLY UNDERSTAND those feelings BUT and that's a big BUT, you NEED to know. Think of the relief you will feel when they say you are fine. God forbid, you did hear what you don't want to hear... then you can get on with treating what is.

Sending love and ENCOURAGMENT to you Krista. Please, please, please mention these concerns tomorrow. You will feel better that you've done so and PLEASE and that's a huge PLEASE NEVER feel as if you "deserve" any of this crap BECAUSE YOU DO NOT. You're human, just like the rest of us and sadly, none of us do it all right. Cancer happens period - to those who "do it right" and those who do not.

Sending God's Peace to hold you and my ENCOURAGEMENT and love to your heart friend.

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 03-20-2008, 07:26 PM   #5
CLTann
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Hi Kris,

Although you specifically asked for no advice, I felt you really are very much disturbed by the symptoms you discovered.

Anytime there is a trace of blood or dark color in phlegm, it is a serious matter. Do not take it lightly. Get an immediate chest test after consultation with your onc. I don't feel you can write it off so casually.

Of course, good luck to you. Hope it is a minor problem.
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Ann

Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
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Old 03-20-2008, 07:44 PM   #6
Faith in Him
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Hi Krista,

I am so sorry you have to go through this. As hard as it is to get tests, I think for your own peace of mind, you should ask for a chest x-ray. I will be thinking of you tomorrow.

Hugs,
Tonya
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 03-20-2008, 08:17 PM   #7
sassy
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My onc has always told me that he does not do random tests, however if there is any indication of a problem---there is a lot to be said for peace of mind. Speak up and get that peace of mind!
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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Old 03-20-2008, 08:21 PM   #8
Mary Anne in TX
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Get the test cutie!!!!! Take care of you and know we love ya anyway you present yourself!! I'm believing you'll Just Do It! ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 03-20-2008, 08:46 PM   #9
lexigirl
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Yup, I'm on board with everyone else. Please have a chest x-ray done. Once you find out ther's NO cancer, you will hopefully find the cause of your symptoms.

Big Hugs,
Lexi
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Old 03-20-2008, 11:02 PM   #10
hutchibk
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I concur...
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 03-21-2008, 06:37 AM   #11
Becky
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You should never be embarassed or refrain from telling us your complaints regardless. It is why we are here.

Get a chest xray or CT scan. Smoking can make this happen too as it causes some constriction and it does cause mucus. In a house with forced hot air (or dry conditions), the mucus is thick and hard to get up. The cough to get it up can cause some small capilliaries to burst.

This possible explanation is NO excuse to not get an xray/CT done however.

Hugs to you
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 03-21-2008, 06:44 AM   #12
mimiflower07
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get the chest xray...then you can relax and you will now have a base line
on your lungs.
good luck
suzanne
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suzannne
dx aug10/07
3 pos high, grade 3
tumor 2.5cm multifoc
bil mast recon sept 24/07
neg snb/neg lymph vascular
clear marg
chemo a/cx 4 rds
tomoxifan started feb11/08
herceptin to begin soon
herceptin completed feb/09
aromacin(A.I)for as long as i can
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Old 03-21-2008, 06:58 AM   #13
Sheila
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Krista
Get the xray....anytime yo have blood tinged sputum it is time to get it checked....the good news is it is more than likely from throat or lung irritation than lung cancer...don't blame yourself, it took me a long time to quit...you'll get there when the time is right for you.....smoking did not give you breast cancer, get it checked out for your own peace of mind!
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 03-21-2008, 08:26 AM   #14
~Bellydancer~
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I agree my dear with everyone. Get the test and get the relief of knowledge. Hang in there and don't freak out! My prayers are with you!
Michelle
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Michelle Dick
" Adversity Reveals your strength"

Dx August 15th/07
Invasive Ductal Carcinoma
ER/PR- negative, HER2- positive
Stage 11 with tumor size 3.5cm, .7cm satelite node
Sx Oct 2nd/07
Skin sparing mastectomy of left breast
immediate reconstruction DIEP flap
Nodes 0/3 Sentinal Node Biopsy
Chemo started Nov, 3 rounds FEC and 3 rounds Taxotere and Herceptin every three weeks
Radiation 28 Tx ended on June 13/08
Herceptin was stopped due to falling MUGA score (went from 62 down to 42)
Cardiologist Appt June 24th
Ramipril 2x/d to protect heart and hopefully increase LVEF
Officially NED
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Old 03-21-2008, 08:29 AM   #15
Jackie07
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How did the appoitment go today?
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

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Old 03-21-2008, 08:40 AM   #16
hermiracles
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Dear Krista - you are such a sweet thing! lol I bet you are a gorgeous mum to your little boy!
Like everyone has said I'm sure its nothing major to worry about - but of course we worry about everything! - so its always good to get it checked out when you can.
And I have a hard time too - but please try not to blame your self for anything - we each do the best we can in this life - you have so many endearing qualities - I love to "listen" to your shares. Hope all went well with your treatment sister
Blessings
Hermiracles
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2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
***************
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Old 03-21-2008, 12:20 PM   #17
tricia keegan
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Krista as another smoker here I understand your fears and what you are saying but don't go blaming yourself! You'll quit when you feel able to and even smokers with lung cancer may not have helped their situation but no one deserves this disease. That said I do agree with the other's, I know it's scary but get the x ray done if only for peace of mind. I had a scare like this myself during chemo but thankfully it was okay and I'm praying your's will be too..
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 03-21-2008, 02:37 PM   #18
jones7676
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Hey, they will check you out and find out what it is. My mom was coughing up blood one time and it was caused by "chicken stones" believe it or not. When she was a kid they raised chickens on the farm and there are stones mixed in with the feed. Apparently it sat in her lung for about 50 years and when she got older it broke through and caused her to spit up blood. We were all worried because she has smoked for years. So, maybe it is just something weird like that. I'm hoping it is nothing serious....
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Barb

10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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Old 03-21-2008, 02:47 PM   #19
kcherub
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Join Date: Apr 2007
Posts: 292
Hi, hi, hi! Thank you all so much--I didn't mean that I didn't "want" advice or wouldn't take it, I just meant that I just needed to vent! I did read everyone's replies this morning before I left, but I was running late to get Cooper to school by 8:30, and then to get to my ONC. by 8:45!

I had Herceptin, which always takes so much longer than the 1 1/2 hours it should. My ONC. said that he didn't think there way anything to worry about, took a listen to my chest, but then said:

Krista, knowing you, you will worry about this, so if you want a chest x-ray, go get one after Herceptin.

Ah, he knows me so well. So, I headed down the the imaging lab at the hospital, where I had to wait about an hour to get in. Of course, my anti-anxiety meds had completely worn off by this point! They took me in, did a back and side view, which took all of about 5 minutes. The tech freaked me out by asking me on the way out, "How long have you had that cold?" Wave of panic...so, I called my husband who said asked me if I told them I had radiation. So, I went back, and told her that. She said "Oh! I do need to tell them that." I waited around another 30 minutes or so for the images on a disc. I tried to e-mail them to my husband, without opening them myself. I have no idea what the h*$l to look for, but it didn't work. So, I sat there for another two hours waiting for him to get home.

He looked at the disc--there wasn't a report on there yet, but he said he didn't see anything even resembling "anything". He said that he was surprised that my lungs looked as good as they did having smoked. I didn't hear from my ONC. today, and won't until next week. I took a look at the images, and while I did ask my husband about 20 times "What is that?!?", I feel relieved. Now, he has been doing this for 20 years, and the final word will come from the radiologist at the hospital, but it looks good.

Now I have worked my way through all the usual suspects for BC mets, and I just might be able to breathe for a few months. We shall see...

THANK YOU, THANK YOU, THANK YOU once again for patting me on the back, and confirming my knowledge that no matter what the outcome of any test I ever have to take, you guys will be here to get me through it.

I am going to do two more posts regarding two things that my ONC. and I talked about today, which were very interesting to me!

Take care and HUGE HUGS!
__________________
Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA

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