hair loss 2nd time

sally · 02-23-2008, 04:43 PM

I was told that I will loose my hair again. Did any of you loose your hair once but not the second time? (with the same drugs) I am on Taxotere/Carboplatin/Herceptin. Does it come in curly the second time? I'm thinking because of menopause it might come back grey. I'm only 40 yrs. old but had my ovaries removed so I am post-meno. My hair came back thick dark and curly at first the first time. It eventually went back to my normal hair. Thanks for any input. Sally

Lolly · 02-23-2008, 05:00 PM

Hi Sally, I started losing my hair the second time after starting Taxotere with Hercepin/Xeloda, and ended up shaving it off it got so thin. Now 6 months later am on Taxol/Carbo/Avastin and it's growing back in curley, but gray! (It was dark blond before, but with more and more gray; I'm 53).

I'd had several rounds of other chemos that thin the hair before the T/H/X, so maybe you won't lose it all, it may just thin. Hope so!

<3 Lolly

Heide · 02-23-2008, 05:50 PM

Hi Sally!

I was searching for info on Taxotere when I saw your post. I'm 40 years old too. I am going to be starting another clinical trial 2/29 but if it doesn't prove effective enough, my Onc said next step would be Taxotere/Herceptin. I hope you get some helpful info about this. Take care.

madubois63 · 02-23-2008, 09:27 PM

Hi Sally - In total, I've lost my hair 5 times and had it thin considerably once! My hair is now shoulder length and wavy/curly - same as it always was. There are a few gray hairs sprinkled in there, but I am going to be 45 this year so I guess they'd be there anyway. One friend's hair came in straight and dark, and another's came in curly and white. Everyone is different, but it does come back!!!

hutchibk · 02-23-2008, 10:03 PM

I have lost mine 3 times, each time it has come back 1/3 rat fur brown, 1/3 gray, 1/3 silver... this time since I have been on Xeloda for almost a year, the top hair on top of my head has definitely been thinner and a lot less silver for some reason. Mine has always come back in pretty much the same waviness and texture as it has been for years.

sally · 02-24-2008, 04:27 PM

Thank you so much for the replies. It's nice to know when people are listening and care. I will probably shave my head as soon it starts falling out. Last time it sprinkled down my face everytime I moved my head. I'ts just easier to get rid of it than wait to see how thin it gets. Thanks again. Sally

madubois63 · 02-24-2008, 04:42 PM

Sally - when you shave it, there are always those little nubbies that are left over. I used a tape lint brush to get rid of them. Not only does it clean off your pillow cases, but it pulls the left overs from your scalp. Strange but true...