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Old 02-06-2008, 06:32 PM   #1
jaybt
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Thanks for the link goops. I found it quite interesting. Haven't heard of flax seed either. What it is for anyway?
Saw my onc this week and was complaining to her about body aches and moods swings since starting my AI. Apart from Glucosamine, it was suggested I try early primose oil. I am ER+, and the onc is very particular about hormone additives in complimentary therapies. So if she is correct if appears there is no problem taking GLA.
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5th routine mammogram in March 07.
Lumpectomy & auxilliary node clearance with clear margins left breast.
Mixed Grade 3 ductal & micropapillary carcinoma
Stage 3C. 15 of 16 lymph nodes metatastic with extracapsular spread
ER: 50% +/++ PR: - HER-2 CISH: Positive. Mean copy number per cell :18.5
CT Scan/Bone Scan/Ultrasound no secondaries April 07
DD chemo AC x4 & Taxol x2 with Neulasta followed by weekly low dosage Taxol x6 in June-August 07
35 rads to breast and neck December 07
1 year of Herceptin until July 08 & Arimidex
Mammogram NED Feb 08
1ST YEAR SURVIVOR




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Old 02-06-2008, 07:37 PM   #2
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Wink So Many Conundrums...

My wonderful nut onc (nutritional oncologist vs traditional oncs I also have) is my SUPPLEMENT MAN. *He* says that Black Cohosh, Isoflavones from Red Clover, Flaxseed Oil, Evening Primrose Oil are -- PHYTOESTROGENS. That they are a billionth the strength of real estrogen and are fine for me to take. I AM ER-/PR-. Phytoestrogens are naturally occurring plant estrogen-like. Not synthetic.

I am a hot flasher, hence the need for most of the above. But the Flaxseed Oil was suggested by my ophthamologist for my severely dry eyes (since my Taxotere experience). I cleared it first with my nut onc.

Turns out the Flaxseed and the Primrose have been shown in some studies to be beneficial, actually preventing bc, vs stimulating it.

How'd they come up with the spelling for ophthomologist anyway?? Very silly looking.

I don't/won't grind my Flaxseed. Too much like cooking. I resigned from that activity eons ago...
Andi

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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 02-06-2008, 08:21 PM   #3
Bill
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Wink

I don't know about this one. Way too technical for me ( I think Jean is a closet propeller-head) As I read the posts, I just pictured myself sharing a bag of salt and vinegar chips with Marejo on her confusion couch, trying not to think too much. Marejo says, "what do you think about all this, Bill?" I say, "I don't know, maybe we need some french onion dip to go with these chips, I'll be right back."
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Old 02-06-2008, 09:20 PM   #4
Jean
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Oh Bill,
You caught me....

Ha ha ha
Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 02-07-2008, 03:35 AM   #5
R.B.
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jaybt

Omega 3s play a big part in mental function. Some argue excess Omega 6 is detrimental. GLA figues but is arguably lower in the pecking order than DHA and EPA, and is an Omega 6 so must be considered in terms of overall fat intake.

Brain Building Nutrition Michael A Schmidt is a useful read. There is also a book by Andrew Stroll. They are both available new or s/h on the web.

You might like to search flax seed and flaxseed on this forum. There are those that argue that flaxseed is beneficial.

You might also like to look at the greek diet thread - see above.

There are also some posts on GLA and evening primrose oil other sources points to consider etc.

All of the above contain material that if of interest you can print and take to discuss with your onc.

I am sorry there is quite a lot of reading. There are no definitive answers that are widely agreed, and hence it is not possible to make definitive recommendations.

RB
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Old 02-07-2008, 04:55 AM   #6
Mary Jo
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Oh my gosh Bill............................you know me so well. That's EXACTLY what I'd have said.

Mary Jo
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Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 02-07-2008, 12:49 PM   #7
PinkGirl
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Cool

Hmmm ... now here's a conundrum ... try to figure out the supplement issue or sit on the couch with Marejo, Bill and some chips and dip ... let me think ... I like dill dip. I wonder if dill has any omega 3's ... my luck it is a phytoestrogen ...
Chips and dip or confusion??? Attachment 310
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



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