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Propellerhead? Moi?
Robin,
You restated my concerns EXACTLY, only it sounded much more impressive and scientific! At best, I'm an illiterate propellerhead! Maybe we can go into business together translating this stuff between "english" and "science".
You come to the same opinion I did, and I will definitely pose this question.
Lily - let me know what you find out on your end, it's an interesting question, isn't it? On the other hand, you are clearly doing very well on this drug, so by the "proof is in the pudding" standard it seems not to be hurting.
Brenda, I think you should be ok on the EVOO since for you reducing the amount of Her2 would still be a good thing. In fact, you could probably have my share, too! Ever chug a bottle of EVOO???
If I were to predict, I would guess that the doc's answer will be to avoid ingesting excessive amounts of oleic acid. But unfortunately I doubt the recommendation will be to go back to eating butter!
Hoping to hear some more people weigh in on this...
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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