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Thanks Becky. I sometimes feel like I've opened a pandora's box! I do need to get to the bottom of this. I don't want to be arbitrarily pulled off herceptin either. I will certainly make sure my onc. speaks to Genentech. In the meantime I'm a couch potato until they figure out what's going on. I really enjoy my runs so it's not going to be easy!
Thanks for your support and encouragement!
Jamie
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Diagnosed 11/06 IDC left breast Stage 1, High Grade w/extensive High Grade DCIS. Right breast extensive hyperplasia w/calcifications.
ER-/PR- HER2+++
Bi-lateral masectomy 12/15/06 w/expanders
SNB Node Negative
Chemo Taxotere, Cytoxan 2/07-4/07
Herceptin Started 5/07
Exchange surgery 6/15/07
Herceptin stopped after 12 rounds due to herceptin induced cardiomyopathy
On heart meds 'til?
Age 40 at diagnosis
Cancer may have been a defining moment but it does not define me!
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