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01-15-2008, 10:48 AM
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#1
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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Nitewind, First I would make an appointment with your primary care doctor, they should be cheking out your heart, EKG, Stress test, or Echo, alos check your 02 sats (oxyegen level) low potassuim can also cause these syptoms as well as low HGB. Then I would fire your onc. and get one with a caring attitude. Most times when I have problems I see the doc I work for before I call my onc. Doc I work for is the one who has ordered my CT Scans and Pet Scan and my tumor markers. I love my onc, but she too will not test like I think she should. Best of luck!
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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01-15-2008, 11:29 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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The Family Doc
This is a great place to share concerns and to vent from time to time, too. The odds and ends of information that come from the replies are very helpful.
I see my (retirement age) family physician for many concerns, some cancer, some not cancer. He is easy to visit with, easy-going, a good listener, and offers good advice.
He has far fewer patients than my onc, which in turn increases my comfort level because of his relaxed manner and ear for my concerns.
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
Last edited by Barbara2; 01-15-2008 at 11:31 AM..
Reason: wording
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01-15-2008, 11:38 AM
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#3
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Susan
It sounds to me like your oncologist needs an attitude adjustment! I try to be understanding, I am sure their job is depressing, emotional, but hey, we deserve individual treatment! Your oncologist is only as good as they are for YOU! It doesn't matter what their credentials, if they don't have time for YOU and your concerns, find another....you don't need the added stress! As far as issues with being short of breath, B/P etc, I would take these to my PCP, if needed, they can direct you to a cardiologist or order an echo, stress test etc.... As far as being short of breath...I am truly wondering...I was very short of breath after my last treatment, almost a heavy feeling on my chest. I questioned whether it was fluid, an embolism (us nurses make the worse patients) or some major cardiac problem....it is better now, but I did go and have an echo done...60% so thats not bad after 4 1/2 years of Herceptin. Alot of things can cause the shortness of breath though, B/P problems, CHF (usually you would have extremity swelling), potassium levels being off, low hemoglobin..... if you don't get your answer, have your PCP refer you to a specialist. If you want your scans and your oncologist won't order them, have your PCP do it...it is important that you get them done at the same place for comparison though.
You deserve to vent....keep on venting and they will take notice!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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