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Old 01-12-2008, 06:29 AM   #21
michka
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As I had neo adjuvant chemo, I was able to see that the 60% shrinkage of my tumor was almost achieved after the first 3 rounds of FEC. I then had 12 weeks of Taxol/Herceptine during which the residual tumor didi not reduce much. I suffered from Taxol. I am 90% HR+. Was Taxol the right option for me?
Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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Old 01-12-2008, 02:35 PM   #22
penelope
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alright have not read this entire thread but a little freked out!

I did not recieve taxol for my 7mm, node negative idc just AC and herceptin for a year.

Two oncs told me it would only be of 1% value for me.

did I get the wrong advice? Does this mean that chemo was ineffective for me?

Talk about anxiety.
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Old 01-12-2008, 02:46 PM   #23
Christine MH-UK
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Hi Michka

The problem is that even though 40% is a massive reduction in the rate of recurrence, there are still going to be some women who don't benefit at all.

I had neoadjuvant FEC and it didn't seem to have worked at all and I had severe problems with it. I figure that the taxotere I had after surgery must have done something because I haven't had a recurrence over four years after diagnosis and my prospects were pretty dire and I found taxotere really easy. I had herceptin, but fifteen months after I finished treatment because of when the trial came out.

I guess the good news is that a newly diagnosed her2 positive patient can be pretty confident that the treatments will be worth it.
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Old 01-12-2008, 03:53 PM   #24
AlaskaAngel
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Perspectives

Penelope,

As a 1.6 cm HER2 IDC node-negative with some DCIS who never had Herceptin after having Adriamycin and Cytoxan and 5-FU, and who has never had a taxane (it was believed that taxanes did little for those diagnosed hormone receptor positive), I'm 5 years out with no recurrence.

Hope that provides some perspective,

AlaskaAngel
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Old 01-21-2008, 08:31 PM   #25
Jackie07
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Thanks for the wonderful information.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

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Old 01-22-2008, 12:28 AM   #26
Karen W
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lani and Becky,

Thanks for the information... I feel better after I've read what the two of you have to say.

Karen
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