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Old 01-06-2008, 09:45 PM   #1
lisajones4
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Join Date: Sep 2006
Location: Chicago, IL
Posts: 105
Thanks everyone. I finished Herceptin almost a year ago.

The pain in my shoulder went away after some tylenol today and it hasn't come back. I am hoping the side pain will go as well.

I am going to the doctor on Friday. I will keep you updated. Thanks again!

Lissa
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Old 01-09-2008, 02:01 PM   #2
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Unhappy Having abdominal ultrasound on Friday

Doing this as I too have been having symptoms of gall bladder trouble. The pains, some nausea and tenderness in my right front abdomen. This thread got my attention focused and I saw my GP yesterday.

Having already had liver mets, I knew this seemed different.

Hope Lissa's pains will be just a form of "ceilingfanitis."
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 01-09-2008, 03:23 PM   #3
kareneg
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Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
Hi lISA,

I agree with Becky get it checked better to be safe and have no worries then to worry. Your in my thoughts and prayers.
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Love and Hope
Karen

IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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Old 01-19-2008, 12:12 PM   #4
lisajones4
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Join Date: Sep 2006
Location: Chicago, IL
Posts: 105
Blood work back

Again, thank you for all of your encouragement. I had blood work last week and it was in "normal range." Do you think I should push for a CT scan? I am going back to see my doc in two weeks. Thanks again for all of your help.

Lisa
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Old 01-19-2008, 12:53 PM   #5
Rupali
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Join Date: Dec 2005
Posts: 148
Hi Lisa,
I had similar pains. Got the blood work done. The liver enzymes came slight bit higher. Doc asked to stop tykerb for one week.
Got the Liver function test done again and all enzymes back to normal.
Got ultrasound of the liver, kidney,spleen gall bladder - all normal..
The pain went away for a few days and now after 3-4days Ihave it again.
I asked onc for CT scan and she said its not needed as I had PET scan in December and everything was ok.
I am scared and dont know what to do.
Taking Tykerb again as monotherapy but the doc decreased the dose to 4 tablets.
They will do a new blood test next Friday....


Any suggestions.

Regards,
Rupali
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