HonCode

Go Back   HER2 Support Group Forums > Herceptin / Tykerb
Register Gallery FAQ Members List Calendar Today's Posts

Herceptin / Tykerb Share your experiences or ask questions about Herceptin or Tykerb

Reply
 
Thread Tools Display Modes
Old 12-19-2007, 12:42 AM   #1
Kathy S in Tokyo
Senior Member
 
Kathy S in Tokyo's Avatar
 
Join Date: Mar 2007
Location: From Syracuse, NY but living in Tokyo, Japan for 26yrs
Posts: 132
Depletion of savings, divorce...Not having a good week thinking about how to care for 4 kids 14 and under and stay alive by contolling the cancer with Herceptin treatments but hubby says he's paid as much as he can and I should start being considerate of the family budget and that he'd be happy to move out if divorce might make the situation better. Hmmm, quit treatments for the privelege of staying with this gem...I don't think so.

Sigh
__________________
Kathy S in Tokyo (44)
11/2004 partial masectomy (clear margins) - ER/PR++ HER+++
12/2004 Tamoxifen
11/2005 Clavicle & neck lymph nodes mets
30 Days rads, 7 months CEF-T Chemo
6/2006 mid chemo lung mets oral toremifene
10/2006 changed hospitals
12/2006 Tamoxifen and monthly Zoladex
2/2007 Dramatic growth of mets! Stopped Tamoxifen and Zoladex
3/2007 Began weekly Herceptin
6/2007 Added weekly Taxol to regime
4/2008 More lung mets - stopped Taxol
5/2008 Xeloda - 3 weeks on 1 week off
8/2008 Got a port!
9/2008 Stopped Xeloda, started weekly Navelbine
12/2008 Tumor progression, stopped Navelbine
1/2009 Taxotere begins again, once in every three weekly Herceptin IVs
3/2009 Added Zometa pelvic bone met, lung tumors progressing, stopped Taxotere/Herceptin
4/10/2009 Whoa seizure! 6cm&3cm brain mets. craniotomy and gamma knife surgery 5/15/2009 Started
Adria/Cyto stopped 9/15 due to progession. Brain mets back 10/28 surgery more gamma soon
Kathy S in Tokyo is offline   Reply With Quote
Old 12-19-2007, 11:24 AM   #2
Andrea Barnett Budin
Senior Member
 
Andrea Barnett Budin's Avatar
 
Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Wink HARRIE and KATHY...

HARRIE/MARYANNE. You can tell I'm still on tx. I thought MAB was Madame Dubois who is Maryanne. It is embarrassing. I don't know MAB's name but she asked about Pagets. Dear Lord. Pictures definitely help. I know your face and your name(s) and your posts. HI!

KATHY, My heart feels wrenched by your news. Of course reach for Life! Your beauty of hubby infuriates me, so I can't imagine what his attitude must be doing to you. You deserve to be loved and cherished. Somehow you will find a way not to descend into anger and resentment over your whole situation, I pray. I will pray hard. You are so sweet and I enjoy your posts. 4 kids under 14 is more than enough, w/o the foolish man and w/o the foolish bc issue. You have a great deal on your plate. I know I sound out there, but please try to meditate. It offers great solace, a connectedness to your True Self and your divine Source. Stay grounded, sweet Kathy. Know that you are very much loved and loveable!! Stay close to us...
Andi

__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
Andrea Barnett Budin is offline   Reply With Quote
Old 01-16-2008, 03:08 PM   #3
MAB1943
Senior Member
 
Join Date: Jun 2007
Posts: 32
Harrie/kathy I am MAB. I was told by one dr. that paget's is a invasive cancer of the nipple, with crusty red skin and discharge, but I didn't have any of that, but when th ey did the biop of the mastectomy it showed pagets invasive of the nipple.
then another dr said it wasn't cancer and relayed the same crusty,red discharging nipple. ???? Nobody seems to answer with any back up. I can't even find any info on the internet here.?? so, that was why I was asking, not that it matters anymore now. You know I had a biopsy of the nipple before I had the mastectomy and it didn't show the paget's disease, only the DSI, it didn't show that I had invasive cancer either.?? How can th is happen. Mary (MAB1943)
MAB1943 is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 07:26 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter