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Old 12-06-2007, 03:56 PM   #1
KellyA
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Location: Savannah, Georgia
Posts: 301
Thanks Jean- Let's say that's what it is :-). I appreciate you looking up the info for me.

Love, Kelly
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dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED

"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."

-Eleanor Roosevelt

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Old 12-06-2007, 04:57 PM   #2
Mary Jo
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Hi Kelly,

I ditto what Jean said about your photo. It really is SO nice. You really are a beautiful lady. Your heart seems as beautiful as you look on the outside.

Sending prayers for God's Peace to hold you as you wait for results. I know (as we all do) how difficult that is. May the Lord keep you in His perfect peace and may the results be ONLY good. Amen

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 12-06-2007, 06:37 PM   #3
anne2
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Hi
I know it is worrisome to have the TM jump. Did you have a cold or were feeling under the weather when they were done? My mom's onc says that any inflammation can affect marker and still be normal. It is good you are getting scanned to be on the safe side.
Think good thoughts and I will pray you have good results.
Hugs,
Anne
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Old 12-06-2007, 07:49 PM   #4
eric
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Kelly,

Caryn's doctor has made it clear that tm's can go up and down often. It becomes more concerning if it shoots up or continues to move up each time. I know it's easier said than done but try not to worry as it could easily be nothing.
By the way, I agree...great picture of you and your son (my assumption).

Eric
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Old 12-06-2007, 09:58 PM   #5
Barbara2
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I saw Dr. Pegram this past April and what follows is his response to my question about tumor markers. I have to say, I wish I would have pressed him a little more for details. My numbers went up recently, too, and it made me quite nervous. I won't know anything further until my next 3 month check. (This is why some oncs don't do the markers...it causes such anxiety...and if there is trouble brewing, we wouldn't know until symptoms appear or the markers continue to rise.) Here is Dr. Pegram:


Tumor Markers:


What is your opinion of having markers done?<O

I do them. They’re not very good, but I do them once in a while. It’s about like the barometric pressure. “How’s the weather today?” Oh its 760 millimeters of mercury today; well that’s one atmosphere, so that tells you maybe it’s not high or low but it doesn’t tell you the temp, clouds, precip. So that’s exactly the analogy I would make of the tumor markers. They’re a piece of a puzzle; by themselves they’re virtually worthless. But I still give them.

My CA27-29 #s have been in the normal range, but went down a little more after completing Herceptin. Might that possibly show that Herceptin had an effect?<O

They’re all in the normal range. It doesn’t mean a thing. Any bouncing around in the normal range doesn’t mean a thing. I don’t get impressed unless those things double on 2 separate occasions, back to back, a month apart. To impress me it would have to go from 20 to 40 to 80, then I’d say maybe something’s going on. That just means it’s time to take a look with some tests, but it’s not alarming. But 20 to 40 even, doesn’t get me excited. 40 doesn’t mean anything; 38 is the upper end of normal. So if it doesn’t double twice, then I’m unimpressed.
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Blessings and Peace,
Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.
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