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12-03-2007, 07:13 AM
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#1
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 25
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liver lesions ??
Hello Everyone,
I posted this to the newcomers thread, and someone suggest I put in in the her2 thread. (sorry for the repetition, I am just thrilled I figured out how to get into the her2 support forum). My CT scan in Aug. showed multiple lesions in both lobes of liver, also mild fullness in left adrenal gland. New scan in Nov. showed same thing no changes, except it noted that the osseous structures demonstrates mild degenerative changes of the thoracolumbar spine.(?)Dr. feels confident I have nothing to worry about, however he is extremely compassionate. He has ordered me a PET/CT within the wk. I know I am only a stage I, but I have a horrible family history of cancer, just in my immediate family. (Brother-died(22yo, Ewings Sarcoma,sister passed May 07(27yr.old-Uterine Leiomyosarcoma),mother had bc at 41(died at 64yrs. old from lung,hvy.smoker) I do not live by my cancer, but I do get a little nervous about how aggressive and easily my family is to cancer. I am someone who has to know everything there is (good or bad) about it. Anyone, with any thoughts, suggestions, ideas, concerns please feel free to open up!!
I wish everyone a great day, and dont forget to laugh hard at least twice today!!
Pam
__________________
Pam (age 40)
bi-lat mastectomy no recons.
4 IDC along with 4 DCIS
no node involvement SNB (8 nodes removed)
Her2+++ FISH (all 4 primaries)
3 ER pos & 1 primary ER/PR pos
2 primaries Grade II other 2 Grade III
sizes of tumors 1st .8cm 2nd .7cm 3rd 1.2cm 4th .7cm
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12-04-2007, 12:15 PM
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#2
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Sorry I missed your welcoming..
Hello Murph, wanted to pull this post up so you could get some input. Some of the ladies who have issues or education about the liver are under the weather right now, I hope by pulling this up I can help. Welcome to a place I call home, so sorry you had to visit but glad we all have somewhere to all go. Good luck on your journey and feel free to beckon us when you need to>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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12-04-2007, 02:33 PM
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#3
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Hi Murph
I don't have any answers either, but I'm giving this
a bump. I'm sure there must be someone on the board
who could talk to you. Good luck with all of this.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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12-04-2007, 08:04 PM
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#4
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Hi Pam,
Welcome. It sounds like you are doing the right thing to get the PET and Cat scans done. You will know more once you have the results. It is tricky the like we walk between living our normal lives and staying aware of the reality of cancer. We must stay alert. In the best cases we are proven to be just fine in scan results...and that is GREAT, but no need to apologize for staying alert anyway.
Please keep us posted.
Carolyn
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12-04-2007, 11:32 PM
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#5
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Senior Member
Join Date: Oct 2005
Location: southern california
Posts: 287
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Hi,
Welcom here. It seems as though you have had a good look at what cancer can do. I hope you will look at the profiles on this site and know that it can be dealt with on a long term basis. It also looks as though you cought it early!!! eventhough cancer seems to run in your family, it doesn't mean that it is your death sentence. It can be your knowledge to look for it early and beat it if it occurs!!! I also advised someone to look into this forum and not only the newcomers forum for advice and I hope she was able to.
Best of luck, Alice
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12-05-2007, 12:13 PM
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#6
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Deceased
Join Date: Oct 2005
Location: Chadds Ford, Pa
Posts: 206
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Hi Pam
Welcome to our boards. I find so much helpful advice and support here and I know that you will too.
The PET scan is really what you need to sort out what is going on. I have been dealing with liver mets for over two years now and there are many options out there for treatment. I still work 3 days a week and lead a very active life - family, friends, travel, volunteering. But first things first - I always try to stay positive until I know anything for sure (I truly believe it helps you immune system to fight back). So get the PET and let's see what we are dealing with. And I do mean "we" as we are all in this fight together.
Keep us posted.
__________________
Donna
Diagnosed 2/04 - Invasive ductal - no clean margins
node negative - er+pr+, her2++
Mastectomy 4/04 - 4 rounds AC
9/05 - mets to liver treated with carbo/ixabipelone/herceptin
3/06 - complete remission
9/06 - new liver mets, starting Taxotere/Herceptin
1/07 -Liver mets stable, staying on Herceptin
5/07 - Liver, lung progression - starting T/X
12/07 - Liver, lung progression - starting weekly Navilbene/Herceptin
4/08 - Liver progression - started Abraxane, Carbo, Tykerb and Herceptin
7/08 - Liver Progression - started Gemzar, Avastin and Tykerb
10/08 - Liver progression - starting Doxil
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12-05-2007, 06:39 PM
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#7
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Hi Murph,
Welcome to our group! We have several members who are surviving with liver mets, so you will get some responses from them. A PET/CT is a very good idea, your doc sounds great.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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12-05-2007, 09:21 PM
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#8
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Nicola's Husband Bill
Hi, I am new to the site, but Watched Nikki spend hours talking here. When she was first dx'ed with the liver lesions, they put her on Taxol, herceptin, and at that time a clinical study of Lapatinib (Tykerb), which worked well for her. Good luck to you.
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12-06-2007, 11:05 AM
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#9
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 25
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Thank you everyone,
I would like to thank all of you for responding to my post. My PETscan is sced. 12/12. I will keep everyone posted. Thank you all again.
Pam
__________________
Pam (age 40)
bi-lat mastectomy no recons.
4 IDC along with 4 DCIS
no node involvement SNB (8 nodes removed)
Her2+++ FISH (all 4 primaries)
3 ER pos & 1 primary ER/PR pos
2 primaries Grade II other 2 Grade III
sizes of tumors 1st .8cm 2nd .7cm 3rd 1.2cm 4th .7cm
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