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Old 11-26-2007, 02:27 PM   #1
hutchibk
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Komen "State of Breast Cancer" report

First-ever “State of Breast Cancer Report” Outlines Progress Made, Remaining Challenges in Screening, Diagnosis, Treating, Preventing Top Cancer Killer<!--SS_END_SNIPPET(fragment8,2)-->
Susan G. Komen for the Cure Answers Need for Understandable, Up-to-Date Overview on Breast Cancer, Related Issues
DALLAS – November 26, 2007 – Susan G. Komen for the Cure, recognized as the global leader in the breast cancer movement today published the <!-- TRANSIT - HYPERLINK --><!-- .http://www.komen.org/sobc2007. -->State of Breast Cancer Report, a first-ever, reader-friendly snapshot-in-time of where the United States and the global community are in the quest to end breast cancer forever.

http://cms.komen.org/komen/NewsEvent...26_SOBC_Report
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 11-26-2007, 04:58 PM   #2
Soccermom
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Hi Brenda!
First I'd like to congratulate you on your 4th year of suvivorship!!
Thanks for posting this link..I attended a Komen Public Forum 2 weeks ago here in Jackson Mississippi (in my role as patient advocate). Madison County, Mississippi has the highest death rate due to BC in the U.S. This forum included the "whos who" in local politics as well as many from the medical community. Komens goal was to have us brainstorm ideas in regards to improving this states death rate from the disease. My suggestion was to have school nurses begin to demonstrate breast self exam in ther middle schools. My thinking is that we teach our kids to brush their teeth as young as possible so that it becomes a "habit'...why not teach them the "habit" of breast (and testicular) self exam at a young age? I know that there are still some religious and social stigmas to overcome...BUT I believe this wil ultimately help save lives.

Ummm, seems I've gotten on my soapbox...sorry!
Many hugs,Marcia
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