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Old 11-16-2007, 05:04 PM   #1
madubois63
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Steph - I have a friend that is a pharmacist. He has posted on another site about tonic soda having enough quinine in it to help the cramps. I'll forward your post to him and either he'll post or I'll post his reply.
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Old 11-16-2007, 05:19 PM   #2
Lolly
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Steph, I take 400 mg. magnesium daily, on my onc's advice. I started it several years ago when back and diaphram cramps from Navelbine became unbearable, and felt relief within a couple of hours. My onc wanted me to try magnesium first, then if it didn't help he would have written me a script for Quinine.

I discountinued the magnesium after my last course of Navelbine earlier this year, but just started it again this week as the Taxotere/Xeloda combo is starting to cause cramps.
I still get occasional, mild cramps when taking magnesium, but nothing like they were.

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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.

Last edited by Lolly; 11-16-2007 at 05:35 PM.. Reason: oops, wrote 500 mg when I meant 400!
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Old 11-16-2007, 05:41 PM   #3
Lolly
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P.S. I'm lucky that magnesium works for me so far, but it is so aggravating that sometimes we can't get effective remedies for our complicated health concerns without jumping through hoops or paying through the nose! AARRGGG.
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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