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Old 11-14-2007, 05:17 PM   #1
Margerie
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After I told my MIL that I had bc and was going to have a mastectomy in a couple of days and then chemo, she said "Do you have to have a mastectomy? Or are there too many tumors? Because I was a nurse and all the mastectomy patients were in HORRIBLE pain for weeks." I went on to say the only bright side to mastectomy was I probably wouldn't need radiation (little did I know, I had a wad of + nodes) and she said "Well, that is good because if you have radiation, your hair will fall out and that will be just AWFUL!"

She never once asked how I was doing.
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Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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Old 11-14-2007, 07:45 PM   #2
Joanne S
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Wink Margerie

I can relate. I always called my mother-in-law, the mother-out-law, so cold and uncompassionate. Fortunately for me she passed away prior to my bc dx.
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Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.



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Old 11-14-2007, 08:06 PM   #3
sassy
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While I was without hair (BALD), I mostly wore hats. So my sons found a special one for Mother's Day. It read: "I'm too sexy for my hair--because it isn't there!"

I had one good zinger while on Chemo. I usually take the high road but felt my response to this one was warrented.

A student was asked to leave our school, and as is the case I get the unpleasant calls from the parent wanting to know what would happen to their money (They always fail to realize the responsibility of their child's action when asked to leave, and their misplaced anger is directed at us.) She called on Friday (my chemo day) and was old I was out of the office on Friday's. So bright and early Monday morning she calls me and tells me angrily that she had called me on Friday, but was told I was off on Friday's in the summer and THAT must be NICE!

I simply responded, "Actually, I take chemo on Friday's."

After a short pause, she stammered "OH, I hope that is going well." and her tone changed completely for the remainder of the conversation!
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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