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Old 11-11-2007, 05:45 PM   #1
Jeanette
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Smile Port removal

I just had my port removed on Monday. In office procedure, no pain, no down time. Was just told not to lie flat on my back for sox hours. All healed now and you can hardly see the scar. . Jeanette
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Old 11-11-2007, 05:48 PM   #2
weezie1053
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Location: Bedford, Virginia
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Thumbs up

Jeanette, thank you. No pain and no down time is music to my ears. I have a double port, and I am sooo ready to lose it.
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  • Diagnosis 06/06 - Stage II-A BC; BC was 2.5 cm, grade 2; ER/PR negative & HER-2/neu positive;
  • Mastectomy w/ reconstruction (implant) in 09/06;lymph nodes - negative;
  • AC/Cytoxin combo - 4 treatments (dose dense);
  • Taxol/Herceptin combo- 12 weekly treatments;
  • Completed chemo - 2/07; completed restruction 02/07; reduction of left breast.
  • BRCA 1 and 2 negative - 6/15/07;DX high risk for distant recurrence
  • MRI, 08/02/07 - NED
  • 1 year Anniversary - 09/07; completed Herceptin 11/07.
  • Mammo 02/14/08 - NED; MRI - 08/2008 - NED
  • 2 year Anniversary - 09/08
  • Mammo 02/09 - NED; MRI - 08/09 - NED
  • 3rd year Anniversary - 09/09
  • 5th Annivery - 09/2011 - NED
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Old 11-11-2007, 07:29 PM   #3
Chelee
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Posts: 2,511
I'm sure this is NOT normal but my port removal was a nightmare. I had mine in my under arm. (Facing outwards on my upper arm.) The port itself worked great the entire time I had it.

But the radiologist that removed my port seemed like he was in a hurry. He removed it and put the sutures in and told me I did NOT need to come back because he used dissolvable stitches. Two techs that were there finished up and covered it with gauze & this clear adhesive stuff that looked like saran wrap. The only thing they said was NOT to get it wet.

I left there and it was no more the 20 minutes and it was bleeding pretty bad. I was told to go to the ER asap where I spent 4 1/2 hours. I was told NO showers or nothing for over a week and to keep it clean and dry. Mine was a little painful and it did get in the way of my normal activities. In fact it ruined a good two wks of my life so I WISHED I had waited to have it removed. Plus my sutures NEVER did dissolve as promised. They were in my arm for almost 2 months till I got my surgeon to remove them. Again, I am sure this is NOT the norm as I've had many women say they had no problems. I believe you will find most women's experience with port removal went as smoothly as Jeanette's. I'm the only one I know of as always that had a problem. I have a good 4 inch red scar across my arm and its been 6 months since my port was removed. I seriously have never heard of anyone having a problem but me...I really think you will be fine. (It just so happens that Murphy is my best friend)

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 11-11-2007, 07:49 PM   #4
Sheila
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Louise
Lucky You getting it out, and I am getting one in 2 weeks, I meet with the surgeon the 20th...my veins have gone south all of a sudden!
I hope getting it out is simple for you and you have no problems....
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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