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10-07-2007, 07:04 AM
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#1
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Senior Member
Join Date: Nov 2005
Location: Hilton Head Island, SC
Posts: 279
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Very glad to hear of your progress. I am interested in this trial, as both myself and my daughter are BRCA 2+. I googled PARP but didn't come up with much. Do you have any information or a link that I could use? Thanks in advance, Kim
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Kim
Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes
BRCA 2 positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara
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10-07-2007, 09:49 AM
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#2
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Kimberly, you should check out www.facingourrisk.org
It is a site designed for those with an increased risk of br ca including BRCA positive. Soccermom is very involved with this site and knows a lot more about it. I have only recently begun to ck it out. I am also BRCA 2 positive.
Best wishes to you and your daughter.
Maryanne
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*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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10-09-2007, 03:48 PM
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#3
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Senior Member
Join Date: Jul 2007
Location: Bakersfield, CA
Posts: 38
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Kudos Pharmaceuticals - KU-0059436
IRB# Pro00011828 at Cedars- Sinai Medical Center
Here is some info from the consent form, maybe this will help find it.
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 Age 33 at dx - 9/15/06
L breast, Invasive solid DC w/ extensive DCIS, Grade 3, ER/PR negative/ HER2 neu positive (barely)
-AC DD, taxotere, taxol w/ herceptin
-Bi lat 1/18/07, multiple foci of IDC admixed with DCIS, IDC varied from 0.1, 0.5, and up to 1.6 cm, 1/19 + nodes
Expanders in place
Pregnant when dx
Mom to 4 beautiful kiddos (boys: 5 and 14 mos, girls: 17 and 3)
Recurrence in neck lymph node and 8mm spot in L breast above expander, herceptin stopped
BRCA 1 positive
Clinical trial since 7/23/07 (PARP INHIBITOR)-NED for 9 months, supraclavicle node popped back up,..so we cut it out! Full neck dissection - only 1 positive node ER/PR negative and now HER2 negative
Currently on Xeloda and NED
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10-10-2007, 09:59 AM
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#4
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Senior Member
Join Date: Nov 2005
Location: Hilton Head Island, SC
Posts: 279
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Thanks!
I am doing some calling around and the info you sent has helped me get going in the right direction - Kim
__________________
Kim
Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes
BRCA 2 positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara
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10-10-2007, 10:24 AM
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#5
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Just want to add my thanks to a pioneer. Long life to you. May your grandchildren drive you crazy.
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MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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