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I am sorry, Flori, you make me laugh. I have this vision of you with breasts all the way around. What is a Reformer. I have an understanding of Pilates but not with a reformer. I had a physical therapist and she made it worse. I am going to talk with her again about therapy but only if she is willing to learn more about this AWS. The rehab place is supposed to be sending one of her associates to learn about lymphedema in Noveember but no one in this area seems to know anything about therapy after a mastectomy.
How are you doing on the carboplatin (or carboflatten as my husband called it) and tykerb? And what is a skin lympatic rash?
Leslie
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In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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