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09-15-2007, 10:41 PM
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#1
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Senior Member
Join Date: Jul 2006
Location: Shingle Springs, CA - near Sacramento
Posts: 295
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Off Herceptin - Hope I had Enough
Hi Amazing Group,
My MUGA score is improving, up from 52 to 61, but - because it took 4 months to come back up my oncologist said it wouldn't be worth it for me to go back on. My year of herceptin would have been up in Oct. and she doesn't start over from where I left off, so I would only have one more treatment. She said the FinHer results along with the fact that the HERA study was on Herceptin given long after chemo instead of concurrently was basically supporting that I had enough with 7 months worth. Also I am early stage, only 1 node. Hope she's right.
So, I am ready to celebrate - I'M DONE!!!!!!!!!
I think I'll just plan a trip to Miraval and Las Vegas!
Have a great day,
Donna
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09-16-2007, 04:26 AM
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#2
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Senior Member
Join Date: Oct 2005
Location: Bay City, MI
Posts: 73
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HI: I also had to quit Herceptin early because of LVEF problems, and I had mixed feelings too. In one way, I sure wasn't going to miss every 3 weeks getting the treatment, and in another way, I wanted to get the whole year in of herceptin. My mugas are now back to normal. I had to see a cardiologist and was put on coreg and lisinopril. I'm just on lisinopril now. I feel like my old self now. The oncologist at the U of Michigan assured me that European studies show that getting 6 months of herceptin is showing no different results of receiving it for 1 year. That made me feel better.
That's what I did after I was done with herceptin, we planned a cruise, and we had a wonderful time! Plan your trip, and have fun, fun, fun!
Susan
__________________
Sue
IDC, Stage 1, Grade 3
Oncotype Dx Score 40
Her2+++ E+P+
Lumpectomy 5/05
Re-excision 6/05
4AC
33 rounds of radiation
1 year Herceptin (had to quit after 8 months, due to low muga scores)
Faslodex until 11-07
Hysterectomy with ovaries 11-07
Arimidex 12-07 switched to Aromasin 10-09
Quit Aromasin 11-09 due to joint pain
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09-16-2007, 11:25 AM
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#3
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Senior Member
Join Date: Jan 2007
Posts: 368
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Susan, can you tell me why they put you on lisinopril?
My GP just recently put me on it for high blood pressure.
I am also on Herceptin.
__________________
12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
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09-16-2007, 04:58 PM
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#4
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Senior Member
Join Date: Oct 2005
Location: Bay City, MI
Posts: 73
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I was put on lisinopril because it's a ACE inhibitor and I guess it is supposed to help with the blood flow to the heart. My bp was also rising in the last year too, but I guess I'm taking it for the heart.
Sue
__________________
Sue
IDC, Stage 1, Grade 3
Oncotype Dx Score 40
Her2+++ E+P+
Lumpectomy 5/05
Re-excision 6/05
4AC
33 rounds of radiation
1 year Herceptin (had to quit after 8 months, due to low muga scores)
Faslodex until 11-07
Hysterectomy with ovaries 11-07
Arimidex 12-07 switched to Aromasin 10-09
Quit Aromasin 11-09 due to joint pain
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09-16-2007, 05:31 PM
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#5
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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I am certainly not an expert in this area but I also recall my oncologist commenting on the fact that some studies feel that 6 months of Herceptin may be an adequate treatment.
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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09-17-2007, 09:04 PM
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#6
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Bonnie,
There is currently a clincial trial comparing six months vs one year of Herceptin. It is a well know fact that Herceptin does work -- but they aren't sure if more is better or less is better.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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09-17-2007, 09:42 PM
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#7
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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I notice that Barbara has posted a quote from Dr Pegram on the other Herceptin thread. Regarding the length of treatment. I don't know how to bring it over here.......
The whole thing makes my mind spin.....
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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