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Old 09-15-2007, 11:26 AM   #1
harrie
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Location: Hilo, Hawaii
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Joan, yes I had the slight nosebleeds. The lining of your nose gets impacted from the chemo. After some experimentation, I found what worked best was a moisturizing nasal spray over the counter, and like a neosporin ointment rubbed inside my nose with a q-tip at night.
Maryanne
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 09-16-2007, 10:09 AM   #2
gin-tx
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Dear Joan,

I have had slight nosebleeds but nothing heavy. I am only on Herceptin with Aredia so I'm sure my side effects are different. I have a lot of bone and joint pain, especially in hips. Don't know if it's from Herceptin or arthritis. I will mention it to my dr this week and see what he suggests. I had a hip xray a few weeks ago but nothing showed up. Hope you continue to improve and keep me informed of your status.

ginkott1@aol.com
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Old 09-18-2007, 11:15 AM   #3
myraazzopardi
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Hello all.
I have been on herceptin now for five months. the only side effects that I am aware of is tiredness that just comes over me late afternoon. I am working and helping look after four active grandchildren at the moment. May explain it. I am only on herceptin after chemo and rads.
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Old 09-18-2007, 12:00 PM   #4
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Wink Nose bleeds et al...

Joan and all, When I was on Taxotere (a cousin of Taxol) I had a severe nosebleed from the moment I woke up every single day. It took half an hr and half a box of tissues to get all the bld out. Then I was good, except used Vaseline throughout the day and Ayr nasal something at night (a salve). Nosebleeds stopped when I stopped Taxotere. Been on Vit H since '98. Extreme fatigue, aided by my nut/onc -- nutritional oncologist guru/healer -- and his list of supplements for ENERGY, boosting immune sys etc. List in 6/30 thread TO "SUPPLEMENT" OR WAIT, for those interested. Happy to answer any questions you may have. I am always here for you. All of you. And I rest serenely knowing YOU are all always there for me. Love y'all...
Andi

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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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