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Old 09-13-2007, 09:19 PM   #1
Linda
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Join Date: May 2006
Posts: 143
Hi all. Here's my info:
I was advised to be tested because both my grandmothers' had bc (one in her 40's, one at 70) and I am an Ashkanaze Jew, which is a high risk ethnic group. I had something like an 11% chance of carrying the mutation, and saw a genetics counselor at a big University hospital prior to the test. My insurance paid the whole cost (Cigna) -- however Myriad would not run the test until the insurance clearance went through. I tested negative.
Linda
Ps. As I posted earlier, I was told that her+ bc is usually not BRCA+. Even so, it's not impossible or unwise to be tested.
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Old 09-13-2007, 09:40 PM   #2
Karen Weixel
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Posts: 138
I am the 12th person on my mom's side to get bc and I still had to pay a portion ($800) of the cost.

karen
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Old 09-14-2007, 04:54 AM   #3
Kimberly Lewis
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Join Date: Nov 2005
Location: Hilton Head Island, SC
Posts: 279
I always was suspicios I was positive...

I guess every one does in a way though. I sought out the geneticist myself. She worked in the cancer center where my Onc was but he certainly didn't think of it and was surprised I tested positive. We are insured through my husbands co. and had to pay $200. of it. Be sure you go to a board certified counselor. There is a website of course...
http://www.abgc.net/english/view.asp?x=1 is the one I found - they have lists of counselors if you have to do it by yourself.

I think after the work up of past family history I had only 16% possibility. So when I was positive even I was surprised. History gets fuzzy real fast though! It was hard to get information. My son was negative, my daughter positive. But now we know and that does help!
Hope this helps....
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Kim

Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes

BRCA 2
positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara


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Old 09-14-2007, 01:26 PM   #4
Stephanie B.
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Location: Bakersfield, CA
Posts: 66
I don't have a family history, but my onc. ordered the test because I have a daughter and was worried. My insurance picked up 100% of the cost. I have Blue Cross of California-GEM Care. I came back negative by the way. Good luck.

Stephanie B.
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Old 09-18-2007, 09:36 PM   #5
harrie
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Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
Yes, 100% payment.
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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