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Old 09-05-2007, 12:47 PM   #1
madubois63
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Why not?? Good to have a baseline, but that is just my opinion.
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Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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Old 09-05-2007, 01:53 PM   #2
BonnieR
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I happened to have had a brain MRI a few years ago for a persistent dental problem. So I have a base line. (althought he company got sold a few times and most of the files were DESTROYED! I tracked them down and they think mine might still be in storage in Arizona!!!) But I asked the onc nurse practioner yesterday about if they ever do them routinely on us. She said not unless there are symptoms that warrent it.
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 09-05-2007, 02:52 PM   #3
saleboat
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Honestly Jean, I don't think you need a brain scan. You're very likely cured. You didn't mention any symptoms, so I assume that you're thinking about a brain MRI for peace of mind.

I think that these scans can borrow trouble-- there are so many times when people get inconclusive results, or find out that they have some benign thingy that the doctors won't do anything about, but becomes a source of worry. Plus you have to put yourself through the agony of getting the scan, then waiting for the results.

Brain scans are not like mammos, where a baseline is helpful. Unless you are going to get brain scans on a regular mammo-like schedule, I don't get the argument that a baseline is necessary.

Just my two cents-- we're both about on the same schedule-- I was diagnosed in April of 2005-- almost 2.5 years out.

Moving on and beginning to believe that things are okay is very difficult.

My best,
Jen
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dx 4/05 @ 34 y.o.
Stage IIIC, ER+ (90%)/PR+ (95%)/HER2+ (IHC 3+)
lumpectomy-- 2.5 cm 15+/37 nodes
(IVF in between surgery and chemo)
tx dd A/C, followed by dd Taxol & Herceptin
30 rads (or was it 35?)
Finished Herceptin on 7/24/06
Tamox
livingcured.blogspot.com

"Keep your face to the sunshine and you cannot see the shadow." -- Helen Keller
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Old 09-05-2007, 04:12 PM   #4
Joe
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Ifoyour insurance will cover it..Go for it.

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Old 09-05-2007, 05:31 PM   #5
Jean
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Thank you all for replies....

Sending big kiss and hug to all.
Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 09-05-2007, 05:45 PM   #6
Becky
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I got one done as a baseline and I am considering doing it once a year. Your brain is who you are.
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Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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