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Old 09-05-2007, 11:02 AM   #1
Lolly
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Wow, I'm awed by all the good thoughts and advice. You are all the best, and have given me a much needed boost!

Here's to zapping those BAD MONKEYS!


I actually HAVEN'T done much research this time (I do trust my awsome onc, and not having a lot of energy zapped my normally curious mind), but did come across several articles that indicate, as PattyZ says, that this combo is effective when others have failed. I'm banking on it!

I've got two friends here who are HER2+; one has Inflammatory BC and has had Taxotere/Herceptin in the past with a good response. Another has lung mets and hasn't had Taxotere yet, only Navelbine with Herceptin, and is currently almost NED and stable on just Herceptin. I know of several others in our smallish town (population 50K+) who are HER2+ and had Herceptin as adjuvant therapy and as far as I know haven't recurred. I've printed out leaflets that I downloaded from this site and left them at our treatment center with all the other cancer-related brochures, so for all I know some of these women may be aware of this group, sure hope so!

Thanks again all, I really appreciate it. Off to my CT scan.

<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 09-05-2007, 11:12 AM   #2
Sheila
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Lolly
As always, you are in my prayers and thoughts....you are truly my node warrior....we both know how pesky they can be....sending lots of healing thoughts, warm hugs and love.
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 09-10-2007, 02:35 PM   #3
Lolly
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Hi, just wanted you all to know my first Taxotere/Herceptin went fine. I was admitted to the hospital for the day as this is standard protocol with a first infusion of Taxotere, "just in case", but had no problems with reaction. My onc didn't prescribe any pre-med, ie steroid, as the side effects with the weekly dose are generally less severe.

I asked for and got bags of ice for my fingers and toes, and so far no problems there, thanks for the tip girls!

So far I've been feeling pretty well, had some muscle aches and pains by the third day which were easily controlled with pain meds, so all in all I'm pleased. However, still waiting for the Xeloda preauthorization to come through, aaaargggg!

<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 09-10-2007, 02:48 PM   #4
Mary Jo
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HI Lolly,

So happy to hear all went well for you. Hope the darn authorization comes through pronto.

Hugs,

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 09-10-2007, 03:32 PM   #5
Lolly
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Thanks Mary Jo!

Also, I JUST heard from my onc's nurse that the CT showed NO NEW AREAS OF CONCERN, just dealing with the right axilla and chest wall still; what a relief!

<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 09-10-2007, 04:22 PM   #6
IRENE FROM TAMPA
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Thumbs up I wish you the best Lolly

Glad to hear that your first treatment went well for you.

I surely pray that this will blast those stubborn monkeys. You are a true warrior and I know that you will do well.

I see that you will be doing the 3-day. Is this the Susan G. Komen 3-day Is this in your area? Will you be walking it? I am preparing as we speak for ours here in Tampa which will be held on Oct 19,20 and 21st.
Last year was my first year an I came away a truly inspired and humbled person. It was awesome. You will have to let me know how it was for you.

Take care Lolly
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Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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Old 09-10-2007, 05:52 PM   #7
Mary Anne in TX
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Lolly, that's such good news to hear that things went fine during treatment! I too am believing that the "monkeys" will be zapped and you'll be back on course for good health again! ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 09-10-2007, 06:01 PM   #8
Julie2
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congratulations for the good CT. and hope the remaining thing will be wiped out with taxotere. Have you tested your Her2 serum recently? Is there corelation?

Thanks,
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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Old 09-10-2007, 06:21 PM   #9
sassy
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Keeping those prayers going Lolly!
________
DEFIANTASS

Last edited by sassy; 08-22-2011 at 09:30 AM..
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Old 09-10-2007, 06:35 PM   #10
StillHere
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St. Pio Biography

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Padre Pio


<DL><XAKA><DT title="other names and titles by which Padre Pio is known">Also known as <DD>Francesco Forgione; Padre Pio of Pietrelcina; Pio of Pietrelcina </XAKA><XDATE><DT>Memorial <DD>23 September </XDATE><XPROFILE><DT title="brief biography of Padre Pio">Profile <DD>Born to a southern Italian farm family, the son of Grazio, a shepherd. At age 15 he entered the novitiate of the Capuchin friars in Morcone, and joined the order at age 19. Suffered several health problems, and at one point his family thought he had tuberculosis. Ordained at age 22 on 10 August 1910.

While praying before a cross, he received the stigmata on 20 September 1918, the first priest ever to be so blessed. As word spread, especially after American soldiers brought home stories of Padre Pio following WWII, the priest himself became a point of pilgrimage for both the pious and the curious. He would hear confessions by the hour, reportedly able to read the consciences of those who held back. Reportedly able to bilocate, levitate, and heal by touch. Founded the House for the Relief of Suffering in 1956, a hospital that serves 60,000 a year. In the 1920's he started a series of prayer groups that continue today with over 400,000 members worldwide.

His canonization miracle involved the cure of Matteo Pio Colella, age 7, the son of a doctor who works in the House for Relief of Suffering, the hospital in San Giovanni Rotondo founded by Padre Pio. On the night of 20 June 2000, Matteo was admitted to the intensive care unit of the hospital with meningitis. By morning doctors had lost hope for him as nine of the boy´s internal organs had ceased to give signs of life. That night, during a prayer vigil attended by Matteo´s mother and some Capuchin friars of Padre Pio´s monastery, the child's condition improved suddenly. When he awoke from the coma, Matteo said that he had seen an elderly man with a white beard and a long, brown habit, who said to him: "Don´t worry, you will soon be cured." The miracle was approved by the Congregation and Pope John Paul II on 20 December 2001. </XPROFILE><XBORN><DT title="birth information for Padre Pio">Born <DD>25 May 1887 at Pietrelcina, Benevento, Italy as Francesco Forgione </XBORN><XDIED><DT title="death information for Padre Pio">Died <DD>23 September 1968 of natural causes </XDIED><XVENERATED><DT title="information on the declaration of Padre Pio as Venerable">Venerable <DD>18 December 1997 by Pope John Paul II </XVENERATED><XBEATIFIED><DT title="beatification information for Padre Pio">Beatified <DD>2 May 1999 by Pope John Paul II </XBEATIFIED><XCANONIZED><DT title="canonization information for Padre Pio">Canonized <DD>16 June 2002 by Pope John Paul II at Rome, Italy </XCANONIZED><XPRAYERS><DT title="prayers to, by or about Padre Pio">Prayers <DD>Chaplet of Padre Pio </XPRAYERS><XIMAGES><DT title="gallery of images of Padre Pio">Images <DD>Gallery of images of Padre Pio <SMALL>[32 images, 404 kb]</SMALL> </XIMAGES><XSTORE><DT title="commercial links related to ">Storefront <DD>Commercial Links related to Padre Pio </XSTORE><XADDITIONAL><DT title="links to sites devoted to or with information about Padre Pio">Additional Information <DD>Google Directory
Goodyburk's personal page
Pacebene's personal page
Chaplet of Padre Pio
Saint Pio and the Existence of God, by Father Pio Mandato (audio)
A Padre Pio Celebration
National Center for Padre Pio
Padre Pio Foundation of America
Padre Pio.Net
Padre Pio UK Information Centre
Padre Pio Shrine
Padre Pio's Kids
SaintCast podcast episode #11
TeleRadio Padre Pio
L'Osservatore Romano <SMALL>[english]</SMALL>
Pope John Paul II: Canonization Homily </XADDITIONAL><XPRINT><DT title="simplified version of this page for printing">Hard Copy <DD>printer friendly version </XPRINT><XTRANSLATE><DT title="translate this page into other languages">Translate <DD><SCRIPT language=JavaScript><!--function translate(outlanguage){top.location.href='http://translate.google.com/translate?u=' + self.location.href + '&langpair=en%7C' + outlanguage;}//--></SCRIPT>español | français | deutsch | italiano | português </XTRANSLATE><XREADINGS><DT title="brief quotes by or about Padre Pio">Readings <DD>Look what fame he had, what a worldwide following gathered around him! But why? Perhaps because he was a philosopher? Because he was wise? Because he had resources at his disposal? Because he said Mass humbly, heard confessions from dawn to dusk and was-it is not easy to say it-one who bore the wounds of our Lord. He was a man of prayer and suffering.

Pope Paul VI, 21 Febuary 1971, commenting on the life of Padre Pio <HR SIZE=1>And you, Blessed Padre Pio, look down from heaven upon us assembled in this square and upon all gathered in prayer before the Basilica of Saint John Lateran and in San Giovanni Rotondo. Intercede for all those who, in every part of the world, are spiritually united with this event and raise their prayers to you. Come to the help of everyone; give peace and consolation to every heart. Amen!

from the homily of Pope John Paul II at the beatification of Padre Pio <HR SIZE=1>Stay with me, Lord, for it is necessary to have You present so that I do not forget You. You know how easily I abandon You.

Stay with me, Lord, because I am weak and I need Your strength, that I may not fall so often.

Stay with me, Lord, for You are my life and without You I am without fervor.

Stay with me, Lord, for You are my light and without You I am in darkness.

Stay with me, Lord, to show me Your will.

Stay with me, Lord, so that I hear Your voice and follow You.

Stay with me, Lord, for I desire to love You very much and alway be in Your company.

Stay with me, Lord, if You wish me to be faithful to You.

Stay with me, Lord, as poor as my soul is I want it to be a place of consolation for You, a nest of Love.

Stay with me, Jesus, for it is getting late and the day is coming to a close and life passes, death, judgment and eternity approaches. It is necessary to renew my strength, so that I will not stop along the way and for that, I need You. It is getting late and death approaches, I fear the darkness, the temptations, the dryness, the cross, the sorrows. O how I need You, my Jesus, in this night of exile!

Stay with me tonight, Jesus, in life with all its dangers, I need You.

Let me recognize You as Your disciples did at the breaking of the bread, so that the Eucharistic Communion be the Light which disperses the darkness, the force which sustains me, the unique joy of my heart.

Stay with me, Lord, because at the hour of my death, I want to remain united to You, if not by Communion, at least by grace and love.

Stay with me, Lord, for it is You alone I look for, Your Love, Your Grace, Your Will, Your Heart, Your Spirit, because I love You and ask no other reward but to love You more and more.

With a firm love, I will love You with all my heart while on earth and continue to love You perfectly during all eternity. Amen.

Padre Pio's Prayer After Holy Communion </XREADINGS></DD></DL><XFOOTER><HR SIZE=1>
<TABLE border=0><TBODY><TR vAlign=top align=middle><TD>Saints Index Page | Catholic Community Forum | Contact Author | Message Board </TD><TD><FORM action=http://search.freefind.com/find.html method=get target=_top><INPUT type=hidden size=-1 value=6212348 name=id><INPUT type=hidden size=-1 value=r name=pid><INPUT type=hidden size=-1 value=ALL name=mode><INPUT name=query><INPUT type=submit value=search></FORM></TD></TR></TBODY></TABLE>
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__________________
04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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