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Old 09-04-2007, 10:38 AM   #1
dorinda
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Join Date: Jul 2007
Posts: 43
i work nites so my sleep patterns are all messed up. after my chemo i am wired for about 2 days and cannot sleep due to decadron and then after that i am kinda fatigued. when i have trouble sleeping i take a tylenol pm. i have wanted to ask for something but never have.
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nov 2006 dx. with bc. 3 tumors removed from left breast lumpectomy done. her2 postive er+pr-. scans showed extensive spine mets(to many to count) ,3 tumors on left rib,one tumor on skull and 3 tumors on liver. stage IV from get go. dec.2006 started chemo taxol and herceptine wkly. zometa monthly. rescanned in march 2007, liver tumors shrinking a little. bones to early to tell but pain is gone in my back. rescanned in june 2007. liver mets gone, bone scan looking better but still alot in my spine. still on taxol and herceptine. zometa monthly. rescanned in august due to ca 2729 going up. liver still good , mets in ribs and skull gone but multiple areas still on lumbar and sacrum. mri of brain august 07 negative for mets.I AM BELIEVLING GOD FOR MY HEALING.
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Old 09-04-2007, 08:37 PM   #2
weezie1053
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Location: Bedford, Virginia
Posts: 134
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Never took a sleeping pill in my life...until chemo. I was wired while on AC/Cytoxin and Taxol. Onc prescribed Ambien, and it made a world of difference in the quality of my life. I worked through most of my chemo, and I needed whatever rest I could muster. Now, I occasionally break one in half. This website keeps me awake at night. I feel like I need to check in every couple of days so I don't miss something. Went to my second support group meeting tonight, and I told my husband, I just feel like I have learned so much from the website vs. what those gals at the support group are sharing.
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  • Diagnosis 06/06 - Stage II-A BC; BC was 2.5 cm, grade 2; ER/PR negative & HER-2/neu positive;
  • Mastectomy w/ reconstruction (implant) in 09/06;lymph nodes - negative;
  • AC/Cytoxin combo - 4 treatments (dose dense);
  • Taxol/Herceptin combo- 12 weekly treatments;
  • Completed chemo - 2/07; completed restruction 02/07; reduction of left breast.
  • BRCA 1 and 2 negative - 6/15/07;DX high risk for distant recurrence
  • MRI, 08/02/07 - NED
  • 1 year Anniversary - 09/07; completed Herceptin 11/07.
  • Mammo 02/14/08 - NED; MRI - 08/2008 - NED
  • 2 year Anniversary - 09/08
  • Mammo 02/09 - NED; MRI - 08/09 - NED
  • 3rd year Anniversary - 09/09
  • 5th Annivery - 09/2011 - NED
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Old 09-04-2007, 09:05 PM   #3
BonnieR
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Posts: 2,210
I suddenly had problems sleeping when I went off my HRT last year. Hot flashes, night sweats etc.. So I was taking one half of an Ambien. Then, when I got my diagnosis it got worse. My brain goes into overdrive as soon as I hit the pillow. So I listen to relaxation CDs at bedtime. But I also am now take Ambien CR every night prescribed by onc. I don't much care if I get dependent on it. I am also dependent on sleep.
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 09-05-2007, 12:15 PM   #4
Lolly
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Location: Oregon
Posts: 1,756
I started having trouble falling asleep after starting Herceptin, but that was also when I was diagnosed with recurrent bc, stage 4, so I attributed it to anxiety. My PCP recommended a SSRI, which I still take(currently Celexa), and Tylenol PM. I switched to generic benedryl, and take 1/2 a pill nightly (12.5mg) along with 2 mg. Melatonin, about an hour before I go to bed.Usually I can get to sleep now within 15 minutes, unless I've forgotten to take my meds and then I have trouble again, but I don't know if it's anxiety from the bc or anxiety because I've forgotten my meds and am afraid I won't sleep!

<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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