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Old 08-29-2007, 10:36 PM   #1
Chelee
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Location: Southern, CA
Posts: 2,511
Michele, Just thought I would bump up my own post in hopes you might pop & let us know how your doing with the Tykerb. Keeping you in my thoughts. I hope Tykerb hasn't been to rough on you.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 08-31-2007, 09:40 PM   #2
michele u
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Location: Henderson, NE
Posts: 413
Thanks for asking about me!!! Well, the tykerb is interesting all right! I'm supposed to be taking 5 tables a day. I was only taking 4 because i'm only 115 pounds and i thought that was alot of pills...I know, denial. When i take 4 most of the time one comes through the stool, or should i say diarrhea?! I thought, well it must be my body telling me, too many! I've been taking 3 lately. The first 2 days are ok , then the 3rd day really bad diarrhea. So on the weekends i stop taking it. This is my 2nd month. My dr. is letting me decide how long i want to be on it. I'm thinking 4-5 months. If my body can stand it. I know i don't eat the best, that's probably 1/2 the reason for the diarrhea. I've lost alittle weight on it.
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Michele Ulmer

dx: August 2003 stage 3b 35 pos nodes ER/PR neg Her+
4 AC 12 weekly taxol
one year Herceptin in trial
35 rad tx
vaccine trial Seattle
NED
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