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Old 08-28-2007, 09:22 AM   #1
Sheila
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Join Date: Aug 2003
Location: Morris, IL
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My joy today is that my twin girls are 32.....oh wait a minute, that means I am getting really old...so is that a joy? Yes it is...it means I am still surviving and enjoying each and every beautiful day I'm given.
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 08-28-2007, 01:23 PM   #2
Vanessa
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Location: Houston, Texas
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I agree Sheila getting older is looking better all the time. Congratulations on having 32 year old twins. You did good. And here's to old age.
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Old 08-28-2007, 01:51 PM   #3
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Talking Just Sit Back And Soak In The *joy*...!

GOSH THIS JOY THREAD IS FABULOUS. What a great idea, Brenda! It's a beautiful gift you gave each of us, that keeps on giving, day after day... Thank you, thank you, thank you.

Whenever Andrea Bocelli's Romanza CD plays, wherever I am, I drift into reverie. Also when Savage Garden's Truly, Madly, Deeply is on, I become transported to a cloud midst the heavenly blue sky and take a perch, observing the world. It is magical. The percussion, the words make my heart quiver. I WANT TO STAND WITH YOU ON A MOUNTAIN. (Can you see yourself atop one?) I WANT TO BATHE WITH YOU IN THE SEA. Dreamy. I WANT TO LIVE LIKE THIS FOREVER UNTIL THE SKY FALLS DOWN ON ME... It just fills me with this overpowering feeling of LOVE for every one and every thing that Is! Today, as I was jotting something down, over my computer, my wrist accidentally hit the CD Play button and my song of Love came on.

It reminded me of THE MOMENT. Years ago. I was driving west in the late afternoon in Boca, going to my daughter Ali's house, to visit my then tiny granddaughter. Josie is now about to turn 11. The song came on and all I could think was LIFE IS SO WONDERFUL. AND JOYFUL. IT IS SO GOOD TO BE ALIVE. THANK YOU GOD. I looked up and the sun was getting ready to set. The sky was incredible. Giant brush strokes of vivid neon orange and splatters of hot pink stretched out above me as far as I could see. I was listening to my song of passion and became aware of the magical sight as my ears were soaking in the bliss of the vibe coming from the car radio. I bent my head down to get an even fuller view then reminded myself that I was driving and needed to look at the road. So I managed to look up and around at the same time, taking it all in. IT WAS A WOW NOW MOMENT I still carry with me and replicate every time I hear Truly, Madly, Deeply.

It's now an old song but I still catch it from time to time in the car. I have sat in parking lots, waiting for it to end, never wanting to stop in the middle, wanting every last drop of joy from it that I can reap. And the blue sky in Florida is bluer than any where else on earth, I swear. I can recall the buckets full of spilt paint painted by a master covering the blueness with coral and fuchsia and I feel utterly blessed. Nothing has changed, but suddenly I feel touched by something quite sacred and wondrous. JOY. SERENITY. BELIEF. LOVE. May they be yours as well...
Andi Thank you God for the gift of this glorious day!
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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