HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 08-27-2007, 08:54 AM   #1
chrisy
Senior Member
 
chrisy's Avatar
 
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
I missed the TV show, but I looked yesterday at her website www.crazysexycancer.com and let me tell you, girls, it is not about cancer being sexy! It is about, well, kicking cancer butt. Reminded me of a lot of you gals here - being survivors and refusing to let cancer steal your spirit. In fact I'm going to steal something from her blog and start spelling it canSer "just to piss it off".

She also has a book by the same name and I can't wait to buy it.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
chrisy is offline   Reply With Quote
Old 08-27-2007, 09:15 AM   #2
tousled1
Senior Member
 
tousled1's Avatar
 
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Chrisy,

You didn't miss the show as it's on this Wednesday night on the learning channel. At least on the east coast.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
tousled1 is offline   Reply With Quote
Old 09-02-2007, 05:38 PM   #3
harrie
Senior Member
 
harrie's Avatar
 
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
I think it is very much possible to still remain sexy and beautiful, inside and out, even after having a double mastectomy, reconstruction, chemo, ovaries out, and the works. I honestly mean every single word of that.
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
harrie is offline   Reply With Quote
Old 09-04-2007, 09:02 AM   #4
PinkGirl
Senior Member
 
PinkGirl's Avatar
 
Join Date: Jul 2007
Location: Canada
Posts: 2,193
Question who watched it?

There were 26 posts before the movie aired and only 7 after.
Did you guys watch it???
__________________
PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album
PinkGirl is offline   Reply With Quote
Old 08-27-2007, 09:32 AM   #5
Andrea Barnett Budin
Senior Member
 
Andrea Barnett Budin's Avatar
 
Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Exclamation CanSer holds opportunities galore

The TV show is on WED Chrisy and all -- TLC 9:. I saw her on the Today Show this A.M. The book is CRAZY SEXY CANCER *TIPS*. She's a Warrior, 4 yr Survivor and a ?vascular cancer. Told incurable. WE KNOW. Inoperable. SUCKS. No known treatment. She took the challenge and traveled everywhere for potential therapies, thinking out of the box. I'm going to check out the site Chrisy, but right off I loved her Spirit. She looked serene. Ann Curry mentioned how cancer patients often say it is the best thing that ever happened to them. Which I concur with, odd as it sounds. It was a major turning point in my life, A CATALYST for propelling me forward and upward, Spiritually and philosophically. My relationships became heightened with a crazy sexy LOVE. Paul and I held hands every where. We looked into each other's eyes more. We reached for each other across the pillows in the middle of the night because we were so scared and because this made us feel stronger and more protected. We cherished each day and one another more than ever.

My daughter's stopped hassling me over silly little things they'd ordinarily pull, proclaiming hurt feelings over the most absurd comments I'd make (distorted their intention entirely). With bc dx came I admire you, you're amazing, you're so strong and courageous, I'm so proud of you, I'm so lucky to have you in my life as my Mother, I love you, along with small kindesses and hovering, cards full of beautiful expressions of their deepest feelings.

Priorities rearranged themselves immediately. The annoying chipped paint on my front door (in the middle of the winter in NY when you had to wait to have it repainted) didn't really matter anymore. Even though it was the first thing I saw each and every day I got out of the car and walked in to my house. Piddly dumb stuff. Look at that sky. That tree! I'd go in the house and feed my dogs and water my plants and see how lucky I was. I knew from the getgo, despite my stage fourness, that it could be so very much worse. I see people in parking lots who can barely walk, and I'm not talking about elderly people, people with deformed faces and obviously mentally challenged. My Mother was in a Nursing Home unable to remember her name or who I was, she couldn't walk, talk, ask for a drink of water when she was thirsty, or a sweater when she was cold. She couldn't seem to follow conversation, she couldn't read or feed herself or go to the bathroom herself or bathe herself.

I felt that all the horrid side effects would eventually pass, or at least lessen considerably, and in the end the canSer (thanks Chrisy, I just LOVE pissing off canSer!) would be snuffed out and brought in to control. Incurable. Yeah, I know. So. It's a chronic disease under containment. That's the first goal. Then, staying there! Like acne, you may have a flare up, but you work really really hard and you master the canSer.

When Paul and I were first married, a really nice, slightly older attorney in his office, Joe, who thought I was beautiful but liked to irritate me, would say OH HI SANDY! every time he saw me. My name isn't Sandy. Oh, no? Oh, that's right. ANDY. Actually, Andi, I'd laugh, but cringe inside. After years of this, I finally wised up. As I'd meet Joe I'd say, Oh hi MOE. You should have seen his face! It's JOE. My name is Joe. Oh, yeah, right. Joe. And he never called me anything but Andi ever again.

So canSer, take your incurable self and get away from you. There's no room in my life for the likes of you. You stink. And so does the chemo, but at least it serves a useful purpose. Annihilating you, canSer.

Sending loving, healing energy to all those on this canSer adventure. I don't even want to call it a fight anymore. I work toward *medalling* in this race. I'm done struggling and battling. No one wants to be on the canSer journey, but once you find yourself there, kick it's butt and get on w/Life. It does make you realize how fortunate we are to have all we have despite the necessary losses. Life has never been sweeter. Wishing you WOW Now moments all day, every day.... MUCH LOVE TO ALL MY SISTER AND BROTHERS, Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
Andrea Barnett Budin is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 06:20 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2025, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter