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08-21-2007, 06:27 PM
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#1
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Dear Maire,
As I read your post the first thought in my mind was "I am glad that it was I who had the cancer and not my husband." It is so painful for our loved
ones to endure the disease. Your pain and sorrow screams out from my
lap top. I am so very sorry that you and Ed are in so much pain for each
other. I do know how much you believe - so do not give up (even though
Ed is tired) and he has a right to be. My heart also aches for the feelings
of doom that you are having. Remeber - there certainly are miracles. I
am keeping both of you in my prayers for peace and continued strength.
Please continue with your warrior mentality - and know your comrades are
with you - praying hard for Ed.
Warmly,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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08-21-2007, 07:40 PM
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#2
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Senior Member
Join Date: Mar 2007
Location: Greendale, WI
just outside Milwaukee
Posts: 211
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Oh Marie (tears), I started to read your post before dinner. Had to stop. Started to cry and it is my husbands 52nd b-day today. He was grilling steaks while I caught up on my addiction (this site). Left the computer. Ate a wonderful meal. Had way too much Chardonnay. Came back, avoided finishing your post. Had to finally come back to it. Jeff is out dropping off an emerg sump pump to a friend. We have been together since we were 16. Can't imagine life without him and I constantly worry how he will handle life w/o me. All I can say is that the deep deep sorrow you are already feeling can only be attributed to the bottomless love you share. I must stop now. Jeff will be home any second now and I don't want to ruin his birthday. Try to stay as strong as you can for Ed's sake. So sorry if this is post is a mass of jumbled thoughts. The tears and wine are making it very hard to think straight. I pray you have a restfull night and become re-energized tomorrow. Jeff just walke in. Good Night Sweetie. Karen
__________________
04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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08-21-2007, 08:16 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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do not lose heart
Marie,
listen to what karen said. People sometimes can, and do, step back from the edge of the cliff. Do not lose heart.
Much love
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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08-21-2007, 08:23 PM
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#4
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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I am in awe of your husband's honesty and straigtforwardness. That took alot of courage. And your sharing with us was so brave.
One of our senior members posted something a few days ago that stuck with me. It was about being in a restaurant. She noted that, unbeknownst (sp) to them, there were probably people in that room who had very little time left in the world. But, unlike some of us, they don't know it. They certainly don't have our advance warning of mortality. Life is so fragile. But we KNOW it.
I hope you understand what I am trying to put into words. It is so difficult....
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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