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Old 08-05-2007, 01:00 AM   #1
LisaElder1972
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Unhappy I will be "gumming" pretty soon

This beast holds nothing sacred.I lost my boobs,I lost my hair,came very close to losing my mind.Now,my teeth are crumbling and falling out!!!I always took care of my teeth.I have some terrible toothaches sometimes.I have 2 broke off at the gumline.One of my front teeth split in the middle so now I have a gap between my front teeth and spaces between some other teeth because they are shifting.I have dental insurance through my husbands job so I wasn't too concerned and I made an appointment with the Dentist last week.I told her my first and foremost concern is fixing the 2 front teeth so I don't look like a snaggle toothed old hag.She said I need a root canal and a crown on 1 of the teeth and a buildup and a crown on the other.After insurance pays I still have to pay $500.00!!!!
I called my health insurance(United Healthcare) and asked them if they would cover some of the cost.They told me to have my Dentist request prior approval and they would.That's gonna take 3 weeks and I am terrified that one my front teeth will fall out,then I will be hurting.If I had the money I would pay myself but as you all know,breast cancer leaves you poor as dirt.Anyone else have dental problems and what did you do?

Lisa
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34 year old Mom of 2(16 and 9).Diagnosed with Stage 2b Invasive Ductal Carcinoma on 6-06-06.Had a 2 cm tumor.ER/PR positive HER2 strongly positive.
Had 4 dose dense AC followed by 4 dose dense Taxotere.Last tx was 11-13-06.
Began weekly Herceptin tx 12-05-06.Had Muga 6-14-07 and my Ejection Fraction was 28!!!No more Herceptin for me,EVER.Cardiologist rx'd 4 heart medications,hope it will reverse.
Currently on Femara.Onc has never checked my hormone levels before rx the Femara.Periods stopped 8-06.
Constant joint pain,I feel like I am 90.
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Old 08-05-2007, 02:30 AM   #2
sassy
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Lisa,

I don't really have any advice, just wanted to send my support and prayers to you. Will your dentist go ahead and start the work based on the info your health ins. gave? Perhaps they can give you a temporary partial if one falls out?

Hang in there!
________
HURT FROM PAXIL

Last edited by sassy; 08-22-2011 at 09:25 AM..
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Old 08-05-2007, 06:43 AM   #3
Yorkiegirl
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Yes, I had Dental problems as well. I did have a teeth cleaning and x-ray's and good check up before starting Chemo and everything was fine.

After Chemo, 2 of my teeth in the back cracked. I had to have 6 crowns done.
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Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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Old 08-05-2007, 07:22 AM   #4
TSund
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Lisa,

I'm sorry for your troubles. I've heard that Biotene helps protect the teeth during chemo, don't know if that's true or not.

Does anyone know which drug is the culprit for teeth problems? Do rads affect this also>?

TRS
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Terri, spouse of Ruth, Dallas/Ft. Worth area
Ruth dx 05/01/07 (age 50) Filipino
multifocal, several tumors .5 -2.5 cm, large area
Breast MRI showed 2 enlarged nodes, not palpable
100%ER+, 95%PR+, HER2+++
6x pre-surgery TCH chemo finished 9/15/7 Dramatic tumor shrinkage
1 year Herceptin till 6/08
MRM 10/11/07, SNB: 0/4 nodes + Path: tumors reduced to only a few "scattered cells"
now 50% ER+, PR- ???
Rads finished 1/16/08
Added Tamoxifen,
Finished Herceptin 05/08
NOW is the time to appreciate life to the fullest.
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Old 08-05-2007, 10:16 AM   #5
Yorkiegirl
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I know with me I did use the Biotene Toothpaste and the mouth wash the whole time.

I'm not sure which drug was the culprit. I had AC and Abraxane.

Now I did have some Dental work done while I was getting rad's and also while I was on Herceptin.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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Old 08-05-2007, 11:03 AM   #6
tousled1
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I had problems with my teeth as well. Just had 3 teeth pulled and thank goodness they were all in the back. Chemo is very hard on the teeth. My dentist recommended the Biotene toothpaste and mouthwash which I am now using.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 08-05-2007, 06:54 PM   #7
harrie
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I recommend ACT mouthrinse because it contains fluoride which will help mineralize and strengthen the tooth structure. There are also prescription fluorided toothpastes you can use with a higher concentration of fluoride (can't think of the name right now due to chemo brain).

Sometimes while under stress people tend to clench, and if there are existing fractures on teeth, this may lead to part of the tooth breaking off.

Biotene is a good toothpaste to use for the prevention of mouth sores.

Maryanne
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 08-05-2007, 07:28 PM   #8
kcherub
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Oh, I am so sorry you are dealing with this! You didn't say, but I am curious as to what caused the problems...did your oncologist say?

I am currently having shooting pains in my front lower teeth, but it might be from clenching (which I am catching myself doing). I had a dental check up before starting chemo, but no one told me that I might have serious tooth issues FROM the chemo. I haven't even seen that on anything I have read, and I have read a LOT!

Please keep me updated on how you are doing. Hope they can get it fixed soon for you--I will be praying that you get some relief!

Krista
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Old 08-05-2007, 08:28 PM   #9
harrie
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Kcherub,
After my mastectomy, I was going through some issues, and I know that I was clenching. I experienced a sharp pain in one of my teeth and I know it was from the clenching. I wore my mouth splint and later when the stress subsided as well as the clenching, the pain from the tooth cleared up.
I may be mistaken, but I think many of the problems from the teeth are not primarily due to the direct effects from the chemo, but from secondary problems such as clenching/stress.
Chemo can have a direct impact on the soft tissue like the tongue and cheeks. That is where Biotene is helpful.
Maryanne
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 08-06-2007, 07:03 AM   #10
MJo
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Oh my goodness! I was going to ask about dental problems. THank you. My front tooth has a a hairline crack down the middle. Never had this happen before. Had AC, Taxol and Herceptin for 9 months (Like you I had to stop early due to drop in Muga) I don't know if chemo had anything to do with this. I'm going to dentist next week.
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MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 08-06-2007, 09:42 AM   #11
AlaskaAngel
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What we don't know can hurt us

I'm 5 years out from treatment, and having been treated "back when", my treatment is not really common now (CAF x 6, rads, and briefly tamoxifen due to ? tamo risk for HER2's). No Herceptin. I never had cracked teeth prior to treatment but since then I have. In fact, another one in the lower front just cracked and broke off a chunk again last month. My dentist said he believes chemo (loss of estrogen?) does contribute to this problem.

On the bright side, I had frequent cavities prior to treatment and have not had a single one since. (In what teeth are left, anyway.)

AlaskaAngel
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Old 08-06-2007, 10:18 AM   #12
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Wink I Never Put It All Together

You can read my chemo history in my signature. Lisa, I'm sorry about your teeth issue which, as you say, is further evidence that this beast leaves nothing sacred.

I have had a series of cracked teeth (all in the back, upper and lower) over the years. The dentist keeps asking if I clench. I DID and I had a mouthgaurd made a hundred years ago. When I feel myself clenching, or more accurately my bite *shifts* causing pressure in all the wrong places, feeling weird -- I insert my mouthgaurd. I know how important it is. I use it nightly and occasionally by day when home, when my acclusion is off. Still, I keep getting the cracking. And the expense of crowning, etc. Had one root canal in the same back area on upper right, in gum line.

Never had I suspected the chemo. Just like w/bruising easily. Until I read a post commenting about it, I never made the connection. Which chemo was/is responsible???? Dunno. But it makes sense. I've been on chemo for so long, I don't exactly remember normal. I do know I was a lot younger and figured age countered in, now I'm rethinking.

Thanks all for wising me up. I do not have dental insurance and I am bowled over by the exorbitant price of teeth. I have noted that every one I know who is around my age is having problems in this area, without ever being on chemo. CLENCHING is often the culprit. My old NY dentist used to say -- if you have to put a credit card in your mouth, you have to protect your teeth. She was the brightest and best dentist in the entire world. I adored her. Have a great guy now in Fla, I must say. But not cheap. Wish I had dental insurance. Didn't come w/my husband's job, unfortunately and is quite costly in and of itself.

I did have a LOOSE tooth in the front and was terrified I would lose it before I got it tended to. Forget what the hold up was all about -- oooh memory loss? Now what could that be from?! The dentist did assure me it was imbedded a lot more than I thought, and I should be fine. I ate only soft foods, just to be on the safe side. And did so carefully. It all worked out in the end.

Sending you all a smiley face and LOVE, as always... ANDI
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 08-06-2007, 10:28 AM   #13
Margerie
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When you WBC go down, so does your ability to fight infection (tooth, gum, bone). Also chemo can cause you to change your eating habits and hygiene. Like more frequent small snacks, maybe more carbs, more juice, not as much energy for flossing, etc. And vomiting is an acid wash for your teeth and gums. A chemo biggie is dry mouth- can cause inflammed tissue and makes your teeth MUCH more prone to decay. Even if chemo is just a few months- it can really wreck havoc on your mouth, on your teeth. The Biotene products lubricate (to help with dry mouth, prevent mucositis) and the fluoride products help strengthen teeth and prevent decalcification/decay.
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Are we there yet?


Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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Old 08-10-2007, 08:46 PM   #14
dskdrive
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teeth

I had to have a crown and now I am haviing problems with another tooth cracking. I am almost 3 years out, 54 yrs. young and never had teeth problems before!!! At least I am NED for which I am grateful. I am lucky enough to have pretty good dental insurance for now. The beast will not let us forget that it is lurking around.
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