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Old 08-10-2007, 01:02 PM   #1
Donna
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Join Date: Jul 2006
Location: Shingle Springs, CA - near Sacramento
Posts: 295
Big Sigh Here

Hi Sheila,

I read your post and it just made me heave a sigh, I guess in frustration for all you are going through. 4 years???????? I would so like to be there just to give you a huge hug. Better yet, let's get a bunch of us together and go to some great spa and rejuvenate and replenish for a couple of days.

I know my 4 labs are good company for me when I am down, as I am sure your labs are for you - but HEY! sometimes we need more!

Maybe this little gap in time away from Avastin will shore you up and be just what you need! I really hope it is!

My Love to you, Donna
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Old 08-10-2007, 03:08 PM   #2
StephN
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Location: Misty woods of WA State
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Smile A little respite to see what's what

That is how I would look at it. Plus I can't imagine SO many nose bleeds, etc. With Taxol & Navelbine I had them every once in a while - would just be sitting down and feel the warm sensation of the blood starting to run. Did not know which drug to blame it on as I had the two. And I stopped them both at the same time. My gums bled little as I used the Biotene toothpaste AND mouthwash and took Glucosamine, which will help your gums.

My friend who took Avastin with Abraxane had the blood pressure problems as well; it has taken the better part of a year to get it under pretty good control with much lower med dose.

Taxol is also hard on the peripheral nerves so I hope your feet are doing better than on the Xeloda.

You may want to switch to one of the other new drugs like Sutent if it is avail.

You need to stop at a costume/display/party store and get yourself some big plastic sparkly rings and a crown to wear to your next treatment. Oh, and don't forget a scepter! Also make yourself a gaudy velvet cape.

P.S. You KNOW you have been going to the treatment center too long when the gal who empties the garbage, etc. tells you she has not seen you lately! True story folks.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.

Last edited by StephN; 08-10-2007 at 03:11 PM.. Reason: add P.S.
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Old 08-10-2007, 03:24 PM   #3
Sheila
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Location: Morris, IL
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Steph
You are sooo right....yesterday, I guess I was in a daze, and when I signed in for my blood draw...I forgot to put my last name...no problem, they knew who it was...as do the girls who do the vitals, as do the pharmacy techs, the cleaning ladies...my new friends...all of them at the chemo center.....I must admit, I have met some amazing people there over the years, each one has been an enrichment.
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"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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