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Old 08-08-2007, 08:15 PM   #1
Her2Sue
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Join Date: Jul 2007
Posts: 11
Thank you for replies!!

Helps to know your not alone in this journey! My onc has my next MUGA scheduled for Oct (2 months instead of 3 this time) BUT I will still be doing my Herceptin every 3 weeks until then. UGHHH!
Joe my Onc has always sceduled my MUGA the week before one of my herceptins. HAHA TOO bad I can't get a muga daily for a bit!! LOL that would help with the sanity!!
Love you all
Susan
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Old 08-08-2007, 11:05 PM   #2
Angela
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Join Date: Apr 2006
Location: North Carolina
Posts: 45
My muga dropped to 50.7 but I am still receiving Herceptin. I have a cardiologist who has put me on Coreg (a beta blocker for the heart). He said that a study was done showing that cancer patients taking Coreg and Herceptin did not have much of a drop in their Mugas. I was not put on Coreg until after my muga dropped because I didn't go to the cardiologist until I had the decrease in the muga.
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Hugs and Smiles,
Angela - NC

Dx May 2003 at age 39
Lt mastectomy, no nodes
DCIS, PR- ER- Her+++
4 rounds AC
Recurrence Dec 2006 Rt lung
2/07 - 3 Brain mets - Radiation
3/07 -
Carboplatin and Herceptin
8/07- mets stable. Finished Carboplatin-remain on Herceptin
12/07 - Herceptin only
5/08 - Lung mets grew - tykerb and Navilbene. Reaction to Tykerb -9/08 Herceptin again
12/08 - Lung mets growing - xeloda.
8/09 - Given Zometa for precaution
10/09 - Lung mets back plus new ones. - Put back on Xeloda.
1/10 – Began short-term disability

2/10 –Lung mets growing - Gemzar
9/2010 – Scan show tumors in lungs growing. Put on Ixempra (every 3 weeks). MRI of the brain showed a brain bleed but it had stopped bleeding.


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Old 08-10-2007, 05:21 AM   #3
Shad
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Join Date: Jan 2007
Posts: 16
I have had a similar journey with concern about dropping MUGA scores during chemo and Herceptin therapy (58%, 51%, 51% ---- 62% after Herceptin completed). I am under the impression that as long as we stay above the lower limits of normal (I think above 45 or 50%) that our physicians are likely going to continue chemo and/or Herceptin therapy. We, who are under the pressures of this whole ordeal, tend to cling and even obscess over the fluctuations in the MUGA scores, concerned that the potential cardiotoxicity of chemo (Adria) and Herceptin are going to make our journey even harder. I wonder if, as long as our scores are in the normal range, we should "relax" ha ha and concentrate on positive thinking of healing.
I, too, as a result of postings from this group (thank you) started taking Co-Q and fish oil, and found exercise to be very helpful in my well being.
Shad
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Shad
Stage 1 invasive ductal carcinoma 1/06, two tumors <0.7 cm, unilateral mastectomy 2/06. E+, P+, HER2+
Sentinal node biopsy negative (but 2 abnormal cells seen subcapsule in the first node).
4 rounds of A/C, 1 year of Herceptin.
1/07 Started on Femara - severe lethargy
4/07 Switiched to Arimidex - doing OK
5/07 DIEP free flap reconstruction with tummy tuck!
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