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Old 08-05-2007, 08:25 PM   #1
kerbearcure32
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Question questions on pet scan

this is my 3rd pet since being dx in 10-04-04 with stage3b bc and i am wating still for my results . had pet on thrus. does that mean no news is good news so far i am in ned. thanks kerry
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Old 08-06-2007, 12:35 AM   #2
Lolly
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Hi Kerry; When I've had scans done it sometimes takes a few days or longer for the "report" to get to my onc, and since the weekend has intervened you should hear something Monday or Tuesday. If you can't wait for them to call you, you call them! No sense waiting in limbo if you're anxious to know the results. Keep us posted.

<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 08-06-2007, 05:01 AM   #3
tousled1
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Kerry,

What my oncologist has started to do is schedule a follow-up appointment when any scan or MRI is scheduled. This way it takes the burden off the nurse to have to call. I still call the office and ask for my results. The waiting is a very anxious time. If you had the scan last week your oncologist should have the result Monday.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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