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08-05-2007, 07:01 PM
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#1
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Steph,
You are an inspiration! Congrats on your five years w/NED! I am so happy to read that your friend has beaten some odds herself. I love to read these uplifting stories. Thanks for all you do!
Hugs,
Lexi
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08-05-2007, 07:09 PM
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#2
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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Dear Steph,
I am so happy for you . here's to a lifetime of NED my friend!!!!!!!!
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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08-05-2007, 07:55 PM
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#3
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Steph,
Congratualtions on 5 years NED! That is so encouraging to all of us here on this board to hear such good news. You are an inspiration to us all.
Also great news about your friend! Good to hear that your father is in stable condition as he's been through quite a bit.
You are in my prayers.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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08-05-2007, 08:05 PM
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#4
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Senior Member
Join Date: Nov 2004
Location: Streetsboro, Ohio
Posts: 365
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Great news Steph. You have been such a wonderfull role model for me these past 3 1/2 years. I never thought I would live 6 months with mets, but you and many like you have proven we can live a quality of life whether we are NED, stable or in active disease. Thankyou and praying NED never leaves your side. Lu Ann
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08-06-2007, 09:31 AM
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#5
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Five years and going strong
Dear Steph,
From one "5" to another, a toast to your continuing good health, with plenty of resveratrol! I'm hoping you are listening to NPR today (a very interesting segment on wine production in Bordeaux in regard to global warming), and another discussion later today on All Things Considered, so tune in if you get the chance...
As always,
AlaskaAngel
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08-06-2007, 01:04 PM
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#6
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Congrats Steph on your 5 years of NED - You are a true inspiration for us all, especially we newly diagnosed gals looking for hope -
all the best, and may you continue your dance with NED for many years to come.
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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08-06-2007, 07:53 PM
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#7
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Senior Member
Join Date: Nov 2004
Location: Henderson, NE
Posts: 413
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Hi Steph, i'm so happy your doing good!!!!! I miss talking with you, i know everyone is so busy, living i guess!
__________________
Michele Ulmer
dx: August 2003 stage 3b 35 pos nodes ER/PR neg Her+
4 AC 12 weekly taxol
one year Herceptin in trial
35 rad tx
vaccine trial Seattle
NED
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08-06-2007, 08:10 PM
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#8
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Steph, that is so good to hear! I take hope from your friend also, as I am one who continues to battle "small" mets, that one day I will be NED again.
So glad your dad is improving, even though slowly, as that is so much better than the alternative.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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08-12-2007, 06:27 PM
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#9
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Love it!
Stef,
Love your beautiful news....so happy for you and also happy your father
is doing well also even if it is ever so slow...would you share the product
information on which brand of Olive Oil you are using? I am most curious
and also your diet routine on the Omega 3 6 and 9...I take Omega and of course use Olive Oil but I would love to know your model....esp. since you
are having such wonderful results.
Wishing you continued NED....so inspired by you.
God Bless,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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