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Old 07-26-2007, 03:18 AM   #1
tousled1
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Location: Acworth, GA
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Marie,

Thank you for keeping us updated on Ed's WBR. He is almost finished -- there is light at the end of the tunnel. I'm glad he seems to be tolerating the treatment pretty well. Soon he will start the T/X and I'm praying that it will be the magic bullet that will give you the miracle you so deserve.
Ed is so fortuante to have such a wonderful caregiver. Having a caregiver like you makes a world of difference. You and in my prayers
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 07-26-2007, 06:58 AM   #2
Joy
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thank you for the update on Ed. I am also so glad to hear that the treatment is 'O.K' vs really sucky. And I'm excited to see what happens on T/X. Isn't it almost a miracle in itself what our bodies can take and how we can persevere? NOT that we don't ned the real miracle and with your energy I think it is possible. thank you for inspiring such hope and happiness through your posts. And, as was mentioned, celebrate the end of the radiation!

Best to both of you!
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with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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Old 07-26-2007, 08:32 AM   #3
lu ann
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Believe51

Hi Marie,

I just completed WBR and Rads to my limbar spine last week. A Physical Therapist came here on Wed. to start me on therapy. I won't be starting new treatment for another 6 weeks. My onc. feels it would do more harm then good if I start before I'm ready. Hopefully your husbands doc. will do the same.

I'm down to 1/2 dose of decadron daily for 1 week and then 1/2 dose alternate days for 2 weeks then I'm done. Thank You God. I gained 17 lbs of fluid. I am also eating everything not nailed down. My feet were 4 times normal. I'm taking lasix, but then I have to pee all the time. Plus my legs feel like they are 150lb. each.

I continue to pray for you
Love, Lu ann
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