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I have been on Herceptin every 3 weeks since April of 2004.
side effects are very minor and short term:
~4 hours after treatment I feel extremely tired, but after a good night sleep of about 9-10hours I wake to feel completely normal and rested. approximately 48 hours after infusion I have a slight running nose and itchy eyes which last 1-2 days. My nails are extremely soft so I have to keep them clipped very short or they rip, but that seems to be the only long lasting side effect. I have echo's every 12-14 weeks and so far they remain normal.
KK1
DX stage IV age 45 March 2004
2 cm breast with 2 mets to liver (her2+,er+/pr+)
May 2004-sept 2004 weekly herceptin, taxotere, xeloda , NED sept 2004
Oct 2004 left masectomy
October 2004 Dec. 2006 Herceptin 3 week +aromasin +zoladex ovarian suppression- no progression and NED for just short of 3 years.
Was considering stopping long term use of herceptin when....
December 2006 regrowth of 1 tumor in same exact location in liver
Jan 2006- liver resection left lobe removed
(pathology of removed lobe contained only the single met)
Feb 2007-present continue 3 week herceptin + zladex and switched to Arimidex.
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