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Old 07-01-2007, 04:34 PM   #1
H&B
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Hi
I just wanted to quickly say that I think its a wonderful idea and that more positive publicity is required especially now that there are so many new targeted therapies being made avaialble and also in the pipeline. Stage 4 certainly comes with its multitude is preconcieved ideas that society has labeled from the past especially many parts of the medical profession adds to the doom and gloom story with a high level of ignorance and i think FEAR.
The ladies and men dealing with stage 4 today are stronger, smarter, more empowered than ever before and it really is time to change the streotype of both the stage and the disease.
Would also be a good way to highlight all the wonderful work being done in dozens of labs around the world that are investigating the use of targeted cancer medications that will reduce sideeffects and provice an individualised treatment plan.
When this translates to a wide spread acknowledgement that we as individuals can change our attitudes to what it means to live with this change in our bodies, then we will see the next generation not have the same FEAR of the C.
A full life is generally filled with love,understanding,and passion. I am blessed to be beside my wife who is in the club and dealing daily with the battles you all face, it is private and only those going through it will really truely understand. But certainly by bringing it out into the masses there will start to be more understanding, and more love for all those being touched with Cancer.

Good luck with your proposal and let me know if you would like any help from down under.
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Old 07-01-2007, 07:40 PM   #2
LAURIE
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I just sent my e-mail to Oprah too!
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Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009

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Old 07-02-2007, 03:09 PM   #3
Sheila
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I did too/ I was watching the morning show with Mike And Juliet and they had on 2 breast cancer survivors who had written a book called
Nordies at Noon...it was about 4 BC survivors who were young, all became friends. 2 have since passed away...here is a link to the book.

http://www.nordiesatnoon.com
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Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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