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Kevin & Sue,
While I was on Herceptin I was plagued with bone/joint pain in the lower back and hip area. I tried the every week and every three week schedule eventually settling on the three week schedule. I did however have the Herceptin reconstituted with saline water which helped with the bone/joint pain. I also got a prescription for Lidocaine ointment (not the cream which I did use on my port an half hour before treatment) and would put that on the areas that were painful -- really takes care of the pain. I also requested a bone scan due to the pain and it was clear.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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